Politician · Senator · 27th Seanad
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
Support to revisit policy, legislation and process to approve reimbursement of orphan medicines
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To inform public representatives of the challenges faced by people with a life-limiting cancer diagnosis receiving palliative care in the home.::To make recommendations as to how to support people with a life-limiting cancer diagnosis through government initiatives. ::To invite…
Published name "Irish Cancer Society" equals CRO name "IRISH CANCER SOCIETY" (CRO 20868) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Partnering with the Government to provide free cardiac screening for all young people (aged 12 to 18).
Published name "Dillon Quirke Foundation CLG" equals CRO name "DILLON QUIRKE FOUNDATION COMPANY LIMITED BY GUARANTEE" (CRO 730853) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Greater policy focus on the 80% of cardiovascular disease that could be prevented
Increased knowledge and understanding of unmet needs of people living with rare diseases.::PQs to Minister to seek commitment to deliver expanded newborn bloodspot screening program.::Expansion of newborn bloodspot screening panel to bring us inline (at minimum) with average…
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Awareness raising and improving access to treatments for people with rare diseases
Published name "BioMarin International Limited" equals CRO name "BIOMARIN INTERNATIONAL LIMITED" (CRO 500060) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Increased understanding of the issues faced by people impacted by dementia and action to support their needs
Published name "The Alzheimer Society of Ireland" equals CRO name "THE ALZHEIMER SOCIETY OF IRELAND" (CRO 102700) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
The aim of the correspondence was to encourage members of the Oireachtas to attend the event which would be an opportunity to have informal discussions with ASI staff, raise awareness of dementia in general, and meet people with the lived experience of dementia and family carers.
Published name "The Alzheimer Society of Ireland" equals CRO name "THE ALZHEIMER SOCIETY OF IRELAND" (CRO 102700) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To demonstrate a majority in both Houses of the Oireachtas support the reports full implementation
Promoting equality and accessibility for Autistic people Improving accessibility to the political process for Autistic people
The ILFA want to create awareness for the need for a dedicated Clinical Care Programme for our patients living with pulmonary fibrosis in Ireland, their unmet needs, inequality in terms of treatment by the HSE around rehabilitation, the rising cost of energy at home due to…
Advocate that a stronger focus on prevention of chronic disease within Government will enable policymakers to tackle ongoing hospital overcrowding problems, pressures on community services and the impact of changing demographics. Highlight the impact of harmful industry tactics…
To raise awareness of Ireland's current preparedness for the influenza season 2024/2025 and discuss the burden of influenza in Ireland, particularly focusing on the over 65s population, while also examining public health prevention strategies, disease awareness, vaccination…
Published name "Hanover Media Strategy Limited" equals CRO name "HANOVER MEDIA STRATEGY LIMITED" (CRO 596029) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Public representatives meet with international public health expert Clive Bates who shares international facts and experience on the role of flavoured vaping in reducing tobacco addiction. Provide public representatives with the findings of an independent RedC survey on the…
Improved management of hearing loss across the population.
Published name "Chime" has no legal form. "CHIME LIMITED" (CRO 206335) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.