Lobbying return by ALONE
HealthSupport for review of regulations relating to forthcoming statutory home support scheme; review of staffing levels of strategic primary care roles; cross-departmental funding mechanism for housing with support
Politician · Senator · 27th Seanad
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
Support for review of regulations relating to forthcoming statutory home support scheme; review of staffing levels of strategic primary care roles; cross-departmental funding mechanism for housing with support
Raising awareness and support for the delivery of commitments to neurological care outlined in Budget 2022 and Budget 2023 Raising awareness and support for future further investment in neurological care services, including in Budget 2025::Increased awareness of the needs of…
Published name "Neurological Alliance of Ireland" has no legal form. "NEUROLOGICAL ALLIANCE OF IRELAND COMPANY LIMITED BY GUARANTEE" (CRO 366603) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Secure more public funds for issues of priority for our patient members, including digital health, public and patient partnership, rare diseases, national health policy, and new medicines/innovations
Published name "Irish Platform for Patients' Organisations, Science and Industry" has no legal form. "IRISH PLATFORM FOR PATIENTS' ORGANISATIONS, SCIENCE AND INDUSTRY COMPANY LIMITED BY GUARANTEE" (CRO 408258) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
To raise awareness of challenges faced by people with EB when accessing services and supports in acute and community settings, and to ask for consideration for ringfenced funding for these services in budget 2025.
Published name "DEBRA Ireland" equals CRO name "DEBRA IRELAND" (CRO 141279) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Increased funding for dementia supports and services
Published name "The Alzheimer Society of Ireland" equals CRO name "THE ALZHEIMER SOCIETY OF IRELAND" (CRO 102700) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Support for Seanad motion calling for Government action on loneliness
Support to revisit policy, legislation and process to approve reimbursement of orphan medicines
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Increased knowledge and understanding of unmet needs of people living with rare diseases.::PQs to Minister to seek commitment to deliver expanded newborn bloodspot screening program.::Expansion of newborn bloodspot screening panel to bring us inline (at minimum) with average…
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Increased understanding of the issues faced by people impacted by dementia and action to support their needs
Published name "The Alzheimer Society of Ireland" equals CRO name "THE ALZHEIMER SOCIETY OF IRELAND" (CRO 102700) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
The aim of the correspondence was to encourage members of the Oireachtas to attend the event which would be an opportunity to have informal discussions with ASI staff, raise awareness of dementia in general, and meet people with the lived experience of dementia and family carers.
Published name "The Alzheimer Society of Ireland" equals CRO name "THE ALZHEIMER SOCIETY OF IRELAND" (CRO 102700) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To demonstrate a majority in both Houses of the Oireachtas support the reports full implementation
Promoting equality and accessibility for Autistic people Improving accessibility to the political process for Autistic people
'Posed 5 questions to Health Commmittee Members to ask Families for Reform of CAMHs during their appearance. Topic of the questions were around Autism, ADHD, Accessing CAMHS, Availability and types of supports. Intended results were to have the questions asked and further…
Published name "Mental Health Reform" equals CRO name "MENTAL HEALTH REFORM" (CRO 506850) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
informing relevant elected reps, mental health or disability spokespeople about MHR's submission.
Published name "Mental Health Reform" equals CRO name "MENTAL HEALTH REFORM" (CRO 506850) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
The ILFA want to create awareness for the need for a dedicated Clinical Care Programme for our patients living with pulmonary fibrosis in Ireland, their unmet needs, inequality in terms of treatment by the HSE around rehabilitation, the rising cost of energy at home due to…