Politician · Senator · 27th Seanad
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
To raise the profile of rare disease policy amongst policymakers in Ireland
Published name "Vulcan Consulting Limited" equals CRO name "VULCAN CONSULTING LIMITED" (CRO 578963) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
PQs to Minister to seek commitment to deliver of prog for government promise to support genetic services for people living with rare diseases.
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
PQs to Minister to seek commitment to deliver of prog for government promise to support genetic services for people living with rare diseases.
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
PQs to Minister to seek commitment to deliver of prog for government promise to support genetic services for people living with rare diseases.
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
PQs to Minister to seek commitment to deliver of prog for government promise to support genetic services for people living with rare diseases.
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To seek a meeting with Senators and TDs and request their support in highlighting the key disability issues directly impacting people supported by Muiríosa Foundation and disability service providers nationally.
Published name "Muiriosa Foundation" equals CRO name "MUIRIOSA FOUNDATION" (CRO 353975) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Funding secured in Budget 2024
Funding secured in Budget 2024
We intend to introduce Illumina and our work in the field of genomics, as well as to raise awareness of the importance of implementing the National Genetics and Genomics Strategy to the benefit of patients. We also aim to secure meetings with parliamentarians to highlight how…
Lobbying for measures included in the INMO’s pre-Budget Submission to be implemented as part of Budget 2024
Commitment to investment to fully staff a community neurorehabilitation team in each of the nine HSE CHO areas nationwide as recommended in the 2019-2021 Implementation Framework for the National Neurorehabilitation Strategy
Published name "Neurological Alliance of Ireland" has no legal form. "NEUROLOGICAL ALLIANCE OF IRELAND COMPANY LIMITED BY GUARANTEE" (CRO 366603) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
NISIG contacted a number of DPO’s over the last quarter, regarding the upcoming Assisted Human Reproduction Legislation, specifically addressing the need for an equitable system of publicly funded for fertility treatment and the speed at which public funding will be implemented.
Published name "National Infertility Support and Information Group" has no legal form. "NATIONAL INFERTILITY SUPPORT AND INFORMATION GROUP COMPANY LIMITED BY GUARANTEE" (CRO 765906) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
PQs to Minister to seek commitment to deliver of prog for government promise to support genetic services for people living with rare diseases.
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
For the Senator to raise the IGAP.
Highlight the importance of mental health and fosters meaningful connections and conversations between elected representatives and the voluntary and community sector.
Published name "Mental Health Reform" equals CRO name "MENTAL HEALTH REFORM" (CRO 506850) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.