Politician · Senator · 27th Seanad
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
To encourage TDs and Senators from across the political spectrum to sign up to a group focusing on cardiovascular health::To increase awareness among TDs and Senators of important issues relating to cardiovascular health and achieve priority for the development of services and…
Understanding of the rare disease landscape and the priorities of people living with rare diseases.
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Raise awareness of issues relating to Severe Asthma
Published name "The Asthma Society of Ireland" equals CRO name "ASTHMA SOCIETY OF IRELAND" (CRO 57125) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Policy that expands access and funding for PA services with a rights-based model
Published name "Disability Federation of Ireland" equals CRO name "DISABILITY FEDERATION OF IRELAND" (CRO 140948) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To inform members of the Disability Matters Committee about MHR resources on the UNCRPD, about the increased prevalence of disabilities and about the mental health priorities among different disability groups
Published name "Mental Health Reform" equals CRO name "MENTAL HEALTH REFORM" (CRO 506850) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Improved mental health services for Travellers
Published name "Pavee Point Traveller & Roma Centre" has no legal form. "PAVEE POINT TRAVELLER & ROMA CENTRE COMPANY LIMITED BY GUARANTEE" (CRO 533605) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
We intended to inform politicians that a different way was possible for gender affirming care, and to show that in other countries there are shorter waiting lists and better outcomes for patients. We hoped that this presentation would inform politicians that Ireland has the…
Published name "Transgender Equality Network Ireland" has no legal form. "TRANSGENDER EQUALITY NETWORK IRELAND COMPANY LIMITED BY GUARANTEE" (CRO 481106) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Expansion of the programme to increase the number of conditions screened for, to be in line with the European average of 18 conditions. In 2022, the condition, ADIA-SCID was added to the NBS programme, however this hasn’t been fully implemented yet. In November 2023, Spinal…
Increased knowledge and understanding of unmet needs of people living with rare diseases.::PQs to Minister to seek commitment to deliver expanded newborn bloodspot screening program.::Expansion of newborn bloodspot screening panel to bring us inline (at minimum) with average…
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Inclusion of rare disease priorities in political party manifestos.::Inclusion of rare disease priorities in programme for government following next general election.
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Greater investment in MS services as a result of highlighting issues
Issues affecting the MS community to be taken into account by Oireachtas members
Funding secured for 2 pre-budget asks
For DPO's to attend the launch of Perinatal Mental Health: Listening to Women and Shaping the Road Ahead
Published name "National Women's Council of Ireland" equals CRO name "NATIONAL WOMEN'S COUNCIL OF IRELAND" (CRO 241868) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To provide the Senators with a greater awareness of FASD and see if a legislative programme can be worked on to provide greater supports for people living with FASD in Ireland.
Published name "FASD Ireland CLG" equals CRO name "FASD IRELAND COMPANY LIMITED BY GUARANTEE" (CRO 708129) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.