CRO company · CRO company 656603
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Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
Published name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION CLG" equals CRO name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION COMPANY LIMITED BY GUARANTEE" (CRO 656603) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Swift implementation of SMA and SCID in NBS bloodspot screening programme
Published name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION CLG" equals CRO name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION COMPANY LIMITED BY GUARANTEE" (CRO 656603) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Swift implementation of SMA and SCID in NBS bloodspot screening programme
Published name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION CLG" equals CRO name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION COMPANY LIMITED BY GUARANTEE" (CRO 656603) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Individuals with SMA who were <18yo when the medicine was approved continue to receive treatment into adulthood. However, their peers who were over 18 are excluded from treatment. This injustice continues, With a small number of adults excluded from treatment. We are campaigning…
Published name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION CLG" equals CRO name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION COMPANY LIMITED BY GUARANTEE" (CRO 656603) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To get access to SMA medicine for the 20 or so adults currently excluded on the grounds that they were over 18 when the medicine was approved.
Published name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION CLG" equals CRO name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION COMPANY LIMITED BY GUARANTEE" (CRO 656603) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Expand access to drugs currently available to under 18's Suffering from spinal muscular atrophy to the small number of adults who have thus far been excluded.
Published name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION CLG" equals CRO name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION COMPANY LIMITED BY GUARANTEE" (CRO 656603) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
following the approval of SCID and SMA for inclusion in the newborn screening programme, we continue to campaign for implementation.
Published name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION CLG" equals CRO name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION COMPANY LIMITED BY GUARANTEE" (CRO 656603) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Swift implementation of SMA and SCID in NBS bloodspot screening programme
Published name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION CLG" equals CRO name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION COMPANY LIMITED BY GUARANTEE" (CRO 656603) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
to see spinal muscular atrophy added to newborn screening heel prick test in Ireland
Published name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION CLG" equals CRO name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION COMPANY LIMITED BY GUARANTEE" (CRO 656603) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
addition of SMA to newborn screening blood spot test
Published name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION CLG" equals CRO name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION COMPANY LIMITED BY GUARANTEE" (CRO 656603) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To see spinal muscular atrophy added to the newborn screening heel prick test without further delay.
Published name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION CLG" equals CRO name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION COMPANY LIMITED BY GUARANTEE" (CRO 656603) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Expand number of conditions screened for in heelprick test
Published name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION CLG" equals CRO name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION COMPANY LIMITED BY GUARANTEE" (CRO 656603) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Published name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION CLG" equals CRO name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION COMPANY LIMITED BY GUARANTEE" (CRO 656603) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Published name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION CLG" equals CRO name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION COMPANY LIMITED BY GUARANTEE" (CRO 656603) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Published name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION CLG" equals CRO name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION COMPANY LIMITED BY GUARANTEE" (CRO 656603) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.