Lobbying return by Pender & Associates Ltd
HealthRaise awareness of issues affecting home care sector.
Politician · Senator · 27th Seanad
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
Raise awareness of issues affecting home care sector.
To brief Minister on MHR's PBS priorities and supported by the FG party in their election manifesto
Published name "Mental Health Reform" equals CRO name "MENTAL HEALTH REFORM" (CRO 506850) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To inform deputies and senators about the benefits of adult vaccination including details of a piece of research commissioned by GSK which demonstrates that implementing adult vaccination programmes in Ireland delivers a return
To make real time continuous glucose monitoring part of the standard model of care for diabetes patients in Ireland
To ensure adequate new development funding in the health budget to cover reimbursement of newly approved treatments for Irish patients in 2025.
Discussion regarding access to orphan medicines for Irish patients, including data from latest EFPIA WAIT Indicator Survey, and development of national rare disease plan
Published name "AstraZeneca Pharmaceuticals (Ireland) DAC" equals CRO name "ASTRAZENECA PHARMACEUTICALS (IRELAND) DESIGNATED ACTIVITY COMPANY" (CRO 55502) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Expansion of the programme to increase the number of conditions screened for, to be in line with the European average of 18 conditions. In 2022, the condition, ADIA-SCID was added to the NBS programme, however this hasn’t been fully implemented yet. In November 2023, Spinal…
Tacaíocht maidir le maoiniú TG4 do Bhuiséad 2025
Increased knowledge and understanding of unmet needs of people living with rare diseases.::PQs to Minister to seek commitment to deliver expanded newborn bloodspot screening program.::Expansion of newborn bloodspot screening panel to bring us inline (at minimum) with average…
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Inclusion of rare disease priorities in political party manifestos.::Inclusion of rare disease priorities in programme for government following next general election.
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Ensure issues affecting the MS and wider neurology community were represented at committee level
Greater investment in MS services as a result of highlighting issues
Implementation of the National Neurorehabilitation Strategy and Neurology Model of Care
Issues affecting the MS community to be taken into account by Oireachtas members
Funding secured for 2 pre-budget asks