Politician · TD · 34th Dáil
Check it yourself
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
Expansion of the programme to increase the number of conditions screened for, to be in line with the European average of 18 conditions. In 2022, the condition, ADIA-SCID was added to the NBS programme, however this hasn’t been fully implemented yet. In November 2023, Spinal…
Increased knowledge and understanding of unmet needs of people living with rare diseases.::PQs to Minister to seek commitment to deliver expanded newborn bloodspot screening program.::Expansion of newborn bloodspot screening panel to bring us inline (at minimum) with average…
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Inclusion of rare disease priorities in political party manifestos.::Inclusion of rare disease priorities in programme for government following next general election.
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To secure meetings with each Designated Public Official contacted to discuss the role of medical nutrition in enhancing care for older people, providing postive health outcomes for patients and delivering significant benefits to the health system.
Ensure issues affecting the MS and wider neurology community were represented at committee level
Greater investment in MS services as a result of highlighting issues
Implementation of the National Neurorehabilitation Strategy and Neurology Model of Care
Issues affecting the MS community to be taken into account by Oireachtas members
Funding secured for 2 pre-budget asks
To invite TDs and Senators to attend an event hosted by the Irish Cancer Society to discuss the Society’s recommendations in the Pre-Budget 2025 Submission. ::To raise awareness of the Irish Cancer Society’s Pre-Budget 2025 Submission.
Published name "Irish Cancer Society" equals CRO name "IRISH CANCER SOCIETY" (CRO 20868) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To raise awareness of report findings and garner support for the recommendations.
To seek their support for the submitted pre-budget submission when engaging with Minister Donnelly.
Published name "Cancer Care West CLG" equals CRO name "CANCER CARE WEST COMPANY LIMITED BY GUARANTEE" (CRO 230899) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Improved audiology and eye care services in the community
Seek confirmation from relevant stakeholders to attend the annual Medicines for Europe 2024 Conference - 12 - 13 June in Dublin
For the inclusion of a gym/swim Tax Credit 2025 Budget ::For the inclusion of a gym/swim Tax Credit in the 2025 Budget