Lobbying return by Multiple Sclerosis Ireland
HealthSession secured
Politician · TD · 34th Dáil
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
Session secured
Members are aware of issues prior to session to encourage more engaging conversations
Create a national strategy to address the pervasive issue of loneliness to sit in the office of An Taoiseach. Extend the Safety, Health and Welfare at Work Act 2005 to include specific provisions for content moderators employed by Very Large Online Platforms (VLOPs). Cross…
Published name "Samaritans Ireland" equals CRO name "SAMARITANS IRELAND" (CRO 450409) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Improvement in funding for citizens to live independently.
Published name "Galway Centre for Independent Living" has no legal form. "GALWAY CENTRE FOR INDEPENDENT LIVING COMPANY LIMITED BY GUARANTEE" (CRO 302845) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
To raise the profile of rare disease policy amongst Irish political stakeholders & seek updates on a range of rare disease policy matters.
Published name "Vulcan Consulting Limited" equals CRO name "VULCAN CONSULTING LIMITED" (CRO 578963) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Highlighting MSD's footprint in Ireland and raising awareness of key health policy priorities and local announcements with political stakeholders
Published name "Vulcan Consulting Limited" equals CRO name "VULCAN CONSULTING LIMITED" (CRO 578963) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To make real time continuous glucose monitoring part of the standard model of care for diabetes patients in Ireland
Published name "Vulcan Consulting Limited" equals CRO name "VULCAN CONSULTING LIMITED" (CRO 578963) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To make real time continuous glucose monitoring part of the standard model of care for diabetes patients in Ireland
Expansion of the programme to increase the number of conditions screened for, to be in line with the European average of 18 conditions. In 2022, the condition, ADIA-SCID was added to the NBS programme, however this hasn’t been fully implemented yet. In November 2023, Spinal…
Increased knowledge and understanding of unmet needs of people living with rare diseases.::PQs to Minister to seek commitment to deliver expanded newborn bloodspot screening program.::Expansion of newborn bloodspot screening panel to bring us inline (at minimum) with average…
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Inclusion of rare disease priorities in political party manifestos.::Inclusion of rare disease priorities in programme for government following next general election.
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Greater investment in MS services as a result of highlighting issues
Issues affecting the MS community to be taken into account by Oireachtas members
Funding secured for 2 pre-budget asks
To invite TDs and Senators to attend an event hosted by the Irish Cancer Society to discuss the Society’s recommendations in the Pre-Budget 2025 Submission. ::To raise awareness of the Irish Cancer Society’s Pre-Budget 2025 Submission.
Published name "Irish Cancer Society" equals CRO name "IRISH CANCER SOCIETY" (CRO 20868) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.