Lobbying return by Novartis Gene Therapies Gmbh
HealthThe intended outcome of the event was to raise awareness and engage relevant stakeholders on the need to add more rare diseases to Ireland’s newborn screening programme.
Politician · TD · 34th Dáil
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Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
The intended outcome of the event was to raise awareness and engage relevant stakeholders on the need to add more rare diseases to Ireland’s newborn screening programme.
Publication of the Disability Action Plan in time to inform Budget 2023 planning
Published name "National Federation of Voluntary Service Providers Supporting People with Intellectual Disability" has no legal form. "NATIONAL FEDERATION OF VOLUNTARY SERVICE PROVIDERS SUPPORTING PEOPLE WITH INTELLECTUAL DISABILITY COMPANY LIMITED BY GUARANTEE" (CRO 330650) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Discussion on access to cystic fibrosis medicines in Ireland
Published name "Vertex Pharmaceuticals (Europe) Limited" equals CRO name "VERTEX PHARMACEUTICALS (EUROPE) LIMITED" (CRO 909808) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Address acute hospital capacity and resource deficits, consultant recruitment & retention crisis, and end the inequity imposed on consultants being contracted since 2012.
Commitment to additional investment in neurology nurse specialists over a five year period beginning with Budget 2023
Published name "Neurological Alliance of Ireland" has no legal form. "NEUROLOGICAL ALLIANCE OF IRELAND COMPANY LIMITED BY GUARANTEE" (CRO 366603) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Details on the proposed plans.
Published name "The Irish Hospice Foundation" equals CRO name "THE IRISH HOSPICE FOUNDATION" (CRO 114617) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Commitment to supporting additional investment in neurology nurse specialists within the health system
Published name "Neurological Alliance of Ireland" has no legal form. "NEUROLOGICAL ALLIANCE OF IRELAND COMPANY LIMITED BY GUARANTEE" (CRO 366603) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Fighting Blindness hopes to have gene therapy Luxturna made available to those patients with a mutated RPE65 gene that causes sight loss.
Published name "Fighting Blindness" equals CRO name "FIGHTING BLINDNESS" (CRO 109625) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To expedite the Programme for Government commitment to roll out free contraception to all women starting with women under 25 years
Published name "DHR Consultancy Limited" equals CRO name "DHR CONSULTANCY LIMITED" (CRO 660337) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Commitment to supporting additional investment in neurology nurse specialists within the health system
Published name "Neurological Alliance of Ireland" has no legal form. "NEUROLOGICAL ALLIANCE OF IRELAND COMPANY LIMITED BY GUARANTEE" (CRO 366603) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.