Lobbying return by Novartis Gene Therapies Gmbh
HealthThe intended outcome of the event was to raise awareness and engage relevant stakeholders on the need to add more rare diseases to Ireland’s newborn screening programme.
Politician · Senator · 27th Seanad
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Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
The intended outcome of the event was to raise awareness and engage relevant stakeholders on the need to add more rare diseases to Ireland’s newborn screening programme.
Publication of the Disability Action Plan in time to inform Budget 2023 planning
Published name "National Federation of Voluntary Service Providers Supporting People with Intellectual Disability" has no legal form. "NATIONAL FEDERATION OF VOLUNTARY SERVICE PROVIDERS SUPPORTING PEOPLE WITH INTELLECTUAL DISABILITY COMPANY LIMITED BY GUARANTEE" (CRO 330650) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Oireachtas members to advocate for publication of Capacity Review action plan and Cost of Disability action plan, for funding for disability services, cost of disability payment and other Budget 2023 priorities
Published name "National Federation of Voluntary Service Providers Supporting People with Intellectual Disability" has no legal form. "NATIONAL FEDERATION OF VOLUNTARY SERVICE PROVIDERS SUPPORTING PEOPLE WITH INTELLECTUAL DISABILITY COMPANY LIMITED BY GUARANTEE" (CRO 330650) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
For the Deputies to raise these matters with Minister for Health and/or in Oireachtas sessions
Change in mental health law
Published name "Mental Health Reform" equals CRO name "MENTAL HEALTH REFORM" (CRO 506850) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
An inclusive audit process
highlight issues around funding of our stroke support services
To meet with members of the Oireachtas::Inform members of the Oireachtas on issues affecting home care sector including recruitment, Statutory Home Support Scheme, home support tender & pandemic special recognition payment
Publication of, and funding for, the National Stroke Strategy::Request PQs on the findings of the Irish National Audit of Stroke Organisational Audit Report 2021::To secure a meeting to discuss stroke services in Ireland and Irish Heart Foundation stroke support groups::Request…
To have Oireachtas members attend IHF event 'Protecting children’s future health by regulating food marketing to young people '::Provide information on the need to follow through with Programme for Government commitment for a PHOB, as well as providing supporting evidence for…
Commitment to additional investment in neurology nurse specialists over a five year period beginning with Budget 2023
Published name "Neurological Alliance of Ireland" has no legal form. "NEUROLOGICAL ALLIANCE OF IRELAND COMPANY LIMITED BY GUARANTEE" (CRO 366603) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Investment in home care, outreach care and mental health supports for children and adults with EB.
Published name "DEBRA Ireland" equals CRO name "DEBRA IRELAND" (CRO 141279) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Ensuring members of the Committee had a good understanding of the key issues facing the autism community and promoting our vision of a neuro-affirmative, National Autism Strategy
Support for our work and greater public understanding and acceptance of autism
To invite all Oireachtas members to a coffee morning fundraiser for Daffodil Day taking place in Leinster House
Published name "Irish Cancer Society" equals CRO name "IRISH CANCER SOCIETY" (CRO 20868) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.