Politician · TD · 34th Dáil
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
Expansion of the programme to increase the number of conditions screened for, to be in line with the European average of 18 conditions. In 2022, the condition, ADIA-SCID was added to the NBS programme, however this hasn’t been fully implemented yet. In November 2023, Spinal…
Tacaíocht maidir le maoiniú TG4 do Bhuiséad 2025
Increased knowledge and understanding of unmet needs of people living with rare diseases.::PQs to Minister to seek commitment to deliver expanded newborn bloodspot screening program.::Expansion of newborn bloodspot screening panel to bring us inline (at minimum) with average…
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Inclusion of rare disease priorities in political party manifestos.::Inclusion of rare disease priorities in programme for government following next general election.
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Meetings with Taoiseach, Tanaiste, Ministers and other DPOs to discuss Veterinary Ireland's concerns with the implementation of the legislation and associated Draft Statutory Instrument (SI).::To discuss Veterinary Ireland's concerns on Anti-Microbial / Anti-Parasitic…
Invitation to present to the National Skills Council on the NYCI Skills Summary programme, as well as the need for a youth work apprenticeship programme::Invitation to present to the Oireachtas Committee on Education, Further and Higher Education, Research, Innovation and…
Published name "National Youth Council of Ireland" equals CRO name "NATIONAL YOUTH COUNCIL OF IRELAND" (CRO 58814) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Issues affecting the MS community to be taken into account by Oireachtas members
Funding secured for 2 pre-budget asks
To invite TDs and Senators to attend an event hosted by the Irish Cancer Society to discuss the Society’s recommendations in the Pre-Budget 2025 Submission. ::To raise awareness of the Irish Cancer Society’s Pre-Budget 2025 Submission.
Published name "Irish Cancer Society" equals CRO name "IRISH CANCER SOCIETY" (CRO 20868) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
An allocation of a minimum of €5.5m in funding be allocated in Budget 2024 for the provision of services in 2025. ::A commitment be provided in Budget 2024 that funding be provided on an ongoing basis as part of funding the National Cancer Strategy.
Published name "Cork ARC Cancer Support House CLG" equals CRO name "CORK ARC CANCER SUPPORT HOUSE COMPANY LIMITED BY GUARANTEE" (CRO 655174) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
An outright ban on union-busting. Introduce robust protections for union Reps so that they cant be victimised, discriminated against or dismissed for their union activity. Introduce separate robust anti penalisation protections for union members so that they cant be victimised…
For the inclusion of a gym/swim Tax Credit 2025 Budget ::For the inclusion of a gym/swim Tax Credit in the 2025 Budget
Raise awareness of issues impacting people in recovery from alcohol harm.
Published name "Alcohol Action Ireland" equals CRO name "ALCOHOL ACTION IRELAND" (CRO 378738) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To discuss the level of vaccine protection being offered to the over 65s cohort, and the impact of influenza on the health system
Published name "Hanover Media Strategy Limited" equals CRO name "HANOVER MEDIA STRATEGY LIMITED" (CRO 596029) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Awareness raising and improving access to treatments for people with rare diseases
Published name "BioMarin International Limited" equals CRO name "BIOMARIN INTERNATIONAL LIMITED" (CRO 500060) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.