Politician · TD · 34th Dáil
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
Timely implementation of SMA testing into the heel prick test for newborns
Published name "Novartis Ireland Limited" equals CRO name "NOVARTIS IRELAND LIMITED" (CRO 11931) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Debra wished to thank the parties for their support in 2024 that led to the government support of the 2025 Pre Budget Submission for people living with EB in Ireland and implementation of a plan to fund the initiatives through the HSE from 2025. DEBRA intended to keep parties…
Published name "DEBRA Ireland" equals CRO name "DEBRA IRELAND" (CRO 141279) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To raise the profile of rare disease policy amongst Irish political stakeholders & seek updates on a range of rare disease policy matters.
Published name "Vulcan Consulting Limited" equals CRO name "VULCAN CONSULTING LIMITED" (CRO 578963) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Highlighting MSD's footprint in Ireland and raising awareness of key health policy priorities and local announcements with political stakeholders
Published name "Vulcan Consulting Limited" equals CRO name "VULCAN CONSULTING LIMITED" (CRO 578963) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Awareness raising and improving access to treatments for people with rare diseases.
Published name "Vulcan Consulting Limited" equals CRO name "VULCAN CONSULTING LIMITED" (CRO 578963) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To inform deputies and senators about the benefits of adult vaccination including details of a piece of research commissioned by GSK which demonstrates that implementing adult vaccination programmes in Ireland delivers a return
To get a parliamentary question raised to update on the reimbursement of Jemperli
For them to attend the official opening of the Munster Support Centre in support of the IKA patients. The invitation was sent to all on the list to ask them to attend the official opening of the Munster Support Centre in Glenflesk Wilton Avenue Bishopstown Cork T12X6XP
To share AstraZeneca Ireland's health policy priorities for consideration by political parties ahead of the next General Election
Published name "AstraZeneca Pharmaceuticals (Ireland) DAC" equals CRO name "ASTRAZENECA PHARMACEUTICALS (IRELAND) DESIGNATED ACTIVITY COMPANY" (CRO 55502) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Discussion regarding access to orphan medicines for Irish patients, including data from latest EFPIA WAIT Indicator Survey, and development of national rare disease plan
Published name "AstraZeneca Pharmaceuticals (Ireland) DAC" equals CRO name "ASTRAZENECA PHARMACEUTICALS (IRELAND) DESIGNATED ACTIVITY COMPANY" (CRO 55502) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Expansion of the programme to increase the number of conditions screened for, to be in line with the European average of 18 conditions. In 2022, the condition, ADIA-SCID was added to the NBS programme, however this hasn’t been fully implemented yet. In November 2023, Spinal…
Increased knowledge and understanding of unmet needs of people living with rare diseases.::PQs to Minister to seek commitment to deliver expanded newborn bloodspot screening program.::Expansion of newborn bloodspot screening panel to bring us inline (at minimum) with average…
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Inclusion of rare disease priorities in political party manifestos.::Inclusion of rare disease priorities in programme for government following next general election.
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Issues affecting the MS community to be taken into account by Oireachtas members
Funding secured for 2 pre-budget asks