Lobbying return by Pro Life Campaign
HealthTo inform TDs/Senators from Fianna Fáil of our views
Politician · TD · 34th Dáil
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
To inform TDs/Senators from Fianna Fáil of our views
To provide our members with an update on the progress of the private members bill around orphan medicines, and to hear political representative perspectives on the progress of the national rare diseases plan
Published name "Irish Platform for Patients' Organisations, Science and Industry" has no legal form. "IRISH PLATFORM FOR PATIENTS' ORGANISATIONS, SCIENCE AND INDUSTRY COMPANY LIMITED BY GUARANTEE" (CRO 408258) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
The intended outcome of the event was to raise awareness and engage relevant stakeholders on the need to add more rare diseases to Ireland’s newborn screening programme.
Outline Pfizer's rare disease medicines and investigational gene therapies highlighting need for health systems to adapt to ensure patient access to these new innovations
Published name "Pfizer" has no legal form. "PFIZER LIMITED" (CRO 900988) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Ensure Pfizer COVID 19 antiviral treatment is used in line with other countries and that guidance and pathway enables high risk patients to have timely access
Published name "Pfizer" has no legal form. "PFIZER LIMITED" (CRO 900988) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
To introduce ARDCI to relevant stakeholders and raise awareness of rare disease policy of Ireland
Published name "Vulcan Consulting Limited" equals CRO name "VULCAN CONSULTING LIMITED" (CRO 578963) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Discussion on access to cystic fibrosis medicines in Ireland
Published name "Vertex Pharmaceuticals (Europe) Limited" equals CRO name "VERTEX PHARMACEUTICALS (EUROPE) LIMITED" (CRO 909808) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Sharing views on policy reform to facilitate swifter access to high-tech treatments for patients of high and critical unmet need
Published name "AstraZeneca Pharmaceuticals (Ireland) DAC" equals CRO name "ASTRAZENECA PHARMACEUTICALS (IRELAND) DESIGNATED ACTIVITY COMPANY" (CRO 55502) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
An inclusive audit process
Addressing the needs of patients to access new therapies
Published name "MSD" has no legal form. "M.S.D. LIMITED" (CRO 18759) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Passage of bill into legislation::Public accountability for work of National Screening Advisory Committee::Expansion of Newborn Bloodspot Screening
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Implementation of the rare disease commitments in the 2020 programme for government::Support for newborn bloodspot screening as promised in the 2020 programme for government::Allocation of resources to care through European Reference Networks and new care pathways for those…
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Establishment of cross-party rare diseases group
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Awareness raising
Published name "BioMarin International Limited" equals CRO name "BIOMARIN INTERNATIONAL LIMITED" (CRO 500060) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Awareness raising