Lobbying return by Instinctif Partners Public Affairs Ireland
HealthDiscussion with author of Private Members Bill
Politician · TD · 34th Dáil
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
Discussion with author of Private Members Bill
Awareness raising and introducing BioMarin
Published name "Vulcan Consulting Limited" equals CRO name "VULCAN CONSULTING LIMITED" (CRO 578963) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Enabling timely and equitable access to orphan medicines
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Raise awareness of rare Lymphomas such as Cutaneous T-Cell Lymphoma::Highlight the importance of patient involvement in the health technology appraisal process::Raise awareness of the challenges relating to health technology appraisal for ultra rare conditions.
to get a particular drug called Slenyto covered under the Drug Hardship Scheme
We intended to highlight the delays to the implementation of Ireland's national genomics programme and secure support for its advancement.
Commitment to supporting additional investment in neurology nurse specialists within the health system
Published name "Neurological Alliance of Ireland" has no legal form. "NEUROLOGICAL ALLIANCE OF IRELAND COMPANY LIMITED BY GUARANTEE" (CRO 366603) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Awareness raising and introducing BioMarin
Published name "Vulcan Consulting Limited" equals CRO name "VULCAN CONSULTING LIMITED" (CRO 578963) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To seek meetings to raise awareness
Published name "BioMarin International Limited" equals CRO name "BIOMARIN INTERNATIONAL LIMITED" (CRO 500060) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Seeking reform of reimbursement process for innovative medicines and therapies treating Irish patients with rare diseases::Raising awareness of difficulties faced by Irish patients with hATTR Amyloidosis and seeking policy reform to address address barriers to reimbursement and…
Published name "Hanover Media Strategy Limited" equals CRO name "HANOVER MEDIA STRATEGY LIMITED" (CRO 596029) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Implementation of National Rare Disease Plan recommendations regarding treatments for rare diseases::Ensure rare disease patients have fair equal access to treatments
Published name "Hanover Media Strategy Limited" equals CRO name "HANOVER MEDIA STRATEGY LIMITED" (CRO 596029) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
to communicate findings and implications of the report
Implementation of National Rare Disease Plan recommendations regarding treatments for rare diseases::Ensure rare disease patients have fair equal access to treatments
Published name "Hanover Media Strategy Limited" equals CRO name "HANOVER MEDIA STRATEGY LIMITED" (CRO 596029) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Seeking reform of reimbursement process for innovative medicines and therapies treating Irish patients with rare diseases::Raising awareness of difficulties faced by Irish patients with hATTR Amyloidosis and seeking policy reform to address address barriers to reimbursement and…
Published name "Hanover Media Strategy Limited" equals CRO name "HANOVER MEDIA STRATEGY LIMITED" (CRO 596029) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Awareness raising
Published name "BioMarin International Limited" equals CRO name "BIOMARIN INTERNATIONAL LIMITED" (CRO 500060) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.