Politician · TD · 34th Dáil
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
Awareness raising and improving access to treatments for people with rare diseases.
Published name "Vulcan Consulting Limited" equals CRO name "VULCAN CONSULTING LIMITED" (CRO 578963) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
(i) Government support for improved access to new medicines.::(ii) Reduce the time for access to new medicines from Irish average 541 days to Irish and European set standard of 180 days::(iii) Government support for improved access to Orphan Medicines::(iv) Government support…
Published name "Irish Pharmaceutical Healthcare Association" equals CRO name "IRISH PHARMACEUTICAL HEALTHCARE ASSOCIATION" (CRO 254776) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Addressing the needs of oncology patients to access new therapies
Published name "MSD" has no legal form. "M.S.D. LIMITED" (CRO 18759) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Sharing views on policy reform to facilitate swifter access to high-tech treatments for patients of high and critical unmet need
Published name "AstraZeneca Pharmaceuticals (Ireland) DAC" equals CRO name "ASTRAZENECA PHARMACEUTICALS (IRELAND) DESIGNATED ACTIVITY COMPANY" (CRO 55502) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Awareness raising
Published name "BioMarin International Limited" equals CRO name "BIOMARIN INTERNATIONAL LIMITED" (CRO 500060) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
We intended to highlight the delays to the implementation of Ireland's national genomics programme and secure support for its advancement.
Fighting Blindness hopes to have gene therapy Luxturna made available to those patients with a mutated RPE65 gene that causes sight loss.
Published name "Fighting Blindness" equals CRO name "FIGHTING BLINDNESS" (CRO 109625) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Amendment to existing legislation to accommodate reimbursement of orphan medicines.
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Onward transmission to Minister for Health::Establishment of cross-party group for rare diseases
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To inform TDs and Senators of our objectives as part of the three year review of the Health (Regulation of Termination of Pregnancy) Act 2018
Implementation of National Rare Disease Plan recommendations regarding treatments for rare diseases::Ensure rare disease patients have fair equal access to treatments
Published name "Hanover Media Strategy Limited" equals CRO name "HANOVER MEDIA STRATEGY LIMITED" (CRO 596029) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Awareness raising
Published name "BioMarin International Limited" equals CRO name "BIOMARIN INTERNATIONAL LIMITED" (CRO 500060) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To invite Public Representatives to the IFA's Let's Talk and Walk events. The Green Ribbon campaign is a month-long campaign during September organised by See Change to get people talking openly about mental health problems and to break the stigma of silence associated with…
To expedite the Programme for Government commitment to roll out free contraception to all women starting with women under 25 years
Published name "DHR Consultancy Limited" equals CRO name "DHR CONSULTANCY LIMITED" (CRO 660337) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Discuss access and policy in relation to innovative medicines in treating cystic fibrosis and other serious diseases
Published name "Vertex Pharmaceuticals (Europe) Limited" equals CRO name "VERTEX PHARMACEUTICALS (EUROPE) LIMITED" (CRO 909808) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.