Politician · TD · 34th Dáil
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
Fighting Blindness hopes to have gene therapy Luxturna made available to those patients with a mutated RPE65 gene that causes sight loss.
Published name "Fighting Blindness" equals CRO name "FIGHTING BLINDNESS" (CRO 109625) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To see spinal muscular atrophy added to the newborn screening heel prick test without further delay.
Published name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION CLG" equals CRO name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION COMPANY LIMITED BY GUARANTEE" (CRO 656603) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Establishment of cross party rare disease group at the Oireachtas.::Designation of RDI to provide secretariat support for cross party rare disease group at the Oireachtas.
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Attend meeting
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To highlight key recommendations in the areas of abortion, contraception and relationships and sexuality education in NWC's report on reproductive health and request a meeting
Published name "National Women's Council of Ireland" equals CRO name "NATIONAL WOMEN'S COUNCIL OF IRELAND" (CRO 241868) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Ensuring the committee is accessible and inclusive for Autistic people::A neuro-affirmative report and recommendations from the Committee::Reform and roll-out of the Summer Programme
Encourage politicians to introduce further measures to curb alcohol misuse in Ireland
Published name "Gibney Communications" has no legal form. "GIBNEY COMMUNICATIONS LIMITED" (CRO 237960) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Awareness raising and improving access to treatments for people with rare diseases.
Published name "BioMarin International Limited" equals CRO name "BIOMARIN INTERNATIONAL LIMITED" (CRO 500060) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Sharing views on policy reform to facilitate swifter access to high-tech treatments for patients of high and critical unmet need
Published name "AstraZeneca Pharmaceuticals (Ireland) DAC" equals CRO name "ASTRAZENECA PHARMACEUTICALS (IRELAND) DESIGNATED ACTIVITY COMPANY" (CRO 55502) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To introduce ARDCI to relevant stakeholders and raise awareness of rare disease policy of Ireland
Published name "Vulcan Consulting Limited" equals CRO name "VULCAN CONSULTING LIMITED" (CRO 578963) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Discussion on access to cystic fibrosis medicines in Ireland
Published name "Vertex Pharmaceuticals (Europe) Limited" equals CRO name "VERTEX PHARMACEUTICALS (EUROPE) LIMITED" (CRO 909808) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To raise awareness about the European's Commission's proposed EU Pharmaceutical Strategy
Published name "Vulcan Consulting Limited" equals CRO name "VULCAN CONSULTING LIMITED" (CRO 578963) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Increased capacity, staffing and funding to improve the delivery of health care in acute hospital and mental health services.
Awareness raising and improving access to treatments for people with rare diseases.
Published name "Vulcan Consulting Limited" equals CRO name "VULCAN CONSULTING LIMITED" (CRO 578963) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Asks of the Multiple Scerlosis Society of Ireland met in Budget 2023