Lobbying return by EHF29 LTD
HealthTo secure meetings with DPOs to highlight the role of insourcing and its contribution in reducing waiting lists.
Politician · TD · 34th Dáil
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
To secure meetings with DPOs to highlight the role of insourcing and its contribution in reducing waiting lists.
To elicit answers from the Health Minister on areas related to abortion policy
Inclusion of commercial laboratory operators in PINS, secure parliamentary support, support a potential debates at Oireachtas fora
Published name "Genseq diagnostics Ltd" equals CRO name "GENSEQ DIAGNOSTICS LIMITED" (CRO 745417) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
The introduction of a comprehensive regulatory framework for adult safeguarding as proposed by the Law Reform Commission & mandatory reporting. Effective interagency cooperation. The establishment of an independent safeguarding authority with oversight of safeguarding activity…
Published name "Irish Association of Social Workers" has no legal form. "IRISH ASSOCIATION OF SOCIAL WORKERS LIMITED" (CRO 347784) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
implementation of Minister of Health's decision in November 2023 and SMA is included in the heel prick test
Published name "Novartis Ireland Limited" equals CRO name "NOVARTIS IRELAND LIMITED" (CRO 11931) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Raise awareness of need for public knowledge of risks from alcohol including liver disease, cancer and FASD. No delay in the introduction of planned alcohol health information labelling
Published name "Alcohol Action Ireland" equals CRO name "ALCOHOL ACTION IRELAND" (CRO 378738) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Build awareness around HIV and Hep-C Health-Policy ambition
Raising awareness about rare disease policy in Ireland and the EU and improving access to treatments for rare disease patients
Published name "BioMarin International Limited" equals CRO name "BIOMARIN INTERNATIONAL LIMITED" (CRO 500060) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To secure a meeting with the Health Committee and Minister O'Neill for the request for a clinical care programme for patients living with pulmonary fibrosis in Ireland and to highlight unmet needs of those patients..
Individuals with SMA who were <18yo when the medicine was approved continue to receive treatment into adulthood. However, their peers who were over 18 are excluded from treatment. This injustice continues, With a small number of adults excluded from treatment. We are campaigning…
Published name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION CLG" equals CRO name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION COMPANY LIMITED BY GUARANTEE" (CRO 656603) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
A meeting to discuss support in furthering the three asks contained in the HRCI Position Paper 2025 -resourcing the HSE Action Plan for Health Research, 2019 – 2029, enacting legislation on research ethics committees and biobanking and over the lifetime of this Government,…
Published name "Health Research Charities Ireland" has no legal form. "HEALTH RESEARCH CHARITIES IRELAND COMPANY LIMITED BY GUARANTEE" (CRO 377794) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
To ask the Committee if improved access to therapies and services at local and community-based level will be considered in the workplan.
Published name "Polio Survivors Ireland" equals CRO name "Polio Survivors Ireland" (CRO 354283) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Rare disease plan implementation included on the schedule of work for the Health Committee
Published name "Irish Platform for Patients' Organisations, Science and Industry" has no legal form. "IRISH PLATFORM FOR PATIENTS' ORGANISATIONS, SCIENCE AND INDUSTRY COMPANY LIMITED BY GUARANTEE" (CRO 408258) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
To implement the Mazar's reimbursement review recommendations and publish the working group report ::Faster access to new medicines for patients
Published name "Pfizer" has no legal form. "PFIZER LIMITED" (CRO 900988) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
To highlight the importance of timely access to genetic testing for those with ATTR-CM in Ireland
Published name "Pfizer" has no legal form. "PFIZER LIMITED" (CRO 900988) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.