Niall Blaney

To engage current members of the Group on their interest in staying on as members.::To engage new members of the Oireachtas on their interest in joining the Group.

Funds secured in Budget

Develop local awareness of dementia and community engagement work in the Letterkenny area.

Support among members of Dáil and Seanad Éireann for the establishment of a Clinical Care Programme for patients with lung fibrosis in Ireland by the HSE, and for the additional services needed by those patients.

To secure a meeting with the Health Committee and Minister O'Neill for the request for a clinical care programme for patients living with pulmonary fibrosis in Ireland and to highlight unmet needs of those patients..

Relaunch the All-Party Oireachtas Group on Dementia for the new Oireachtas term - which The Alzheimer Society of Ireland provides the secretariat to - in order to enhance collaboration on dementia policy and improve the lives of people with dementia and their carers

To inform public representatives of the implications of proposed restrictions on flavoured vapes for adult vapers and for the health outlook of smokers who use vaping to quit or reduce their levels of smoking.

Understanding of the rare disease landscape and the priorities of people living with rare diseases.

To provide secretariat of a meeting of the Oireachtas Cross-Party Group on Cancer

Highlighting MSD's footprint in Ireland and raising awareness of key health policy priorities and local announcements with political stakeholders

To inform deputies and senators about the benefits of adult vaccination including details of a piece of research commissioned by GSK which demonstrates that implementing adult vaccination programmes in Ireland delivers a return

To make real time continuous glucose monitoring part of the standard model of care for diabetes patients in Ireland

Expansion of the programme to increase the number of conditions screened for, to be in line with the European average of 18 conditions. In 2022, the condition, ADIA-SCID was added to the NBS programme, however this hasn’t been fully implemented yet. In November 2023, Spinal…

Increased knowledge and understanding of unmet needs of people living with rare diseases.::PQs to Minister to seek commitment to deliver expanded newborn bloodspot screening program.::Expansion of newborn bloodspot screening panel to bring us inline (at minimum) with average…

Inclusion of rare disease priorities in political party manifestos.::Inclusion of rare disease priorities in programme for government following next general election.