Politician · TD · 34th Dáil
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
We intend to introduce Illumina and our work in the field of genomics, as well as to raise awareness of the importance of implementing the National Genetics and Genomics Strategy to the benefit of patients. We also aim to secure meetings with parliamentarians to highlight how…
To draw attention to the lack of attention paid to the issue of foetal pain relief in the Three-Year Review report, despite significant parliamentary support for the measure.
To secure the agreement of the HSE to develop a Clinical Care Programme for patients with Lung Fibrosis.
Commitment to investment to fully staff a community neurorehabilitation team in each of the nine HSE CHO areas nationwide as recommended in the 2019-2021 Implementation Framework for the National Neurorehabilitation Strategy
Published name "Neurological Alliance of Ireland" has no legal form. "NEUROLOGICAL ALLIANCE OF IRELAND COMPANY LIMITED BY GUARANTEE" (CRO 366603) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
PQs to Minister to seek commitment to deliver of prog for government promise to support genetic services for people living with rare diseases.
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
A review of proposed legislation to include changes to address gaps in legislation
Published name "LGBT Support and Advocacy Network Ireland CLG" equals CRO name "LGBT SUPPORT AND ADVOCACY NETWORK IRELAND COMPANY LIMITED BY GUARANTEE" (CRO 605384) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Intended results were for the Regional group to ask government to address these cost pressure issues and to ensure there is capacity in nursing homes nationwide in to the future.
Address challenges around lack of respite places and supported living options for adults with Down syndrome
Published name "Down Syndrome Ireland" equals CRO name "DOWN SYNDROME IRELAND" (CRO 131012) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Retain current position whereby nursing home residents can retain 60 per cent of the income from renting, with 40 per cent going toward the cost of their care
Support for the implementation of the policy recommendation within the National Neurorehabilitation Strategy to ensure that each HSE CHO area has a dedicated community neurorehabilitation team
Published name "Neurological Alliance of Ireland" has no legal form. "NEUROLOGICAL ALLIANCE OF IRELAND COMPANY LIMITED BY GUARANTEE" (CRO 366603) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Changes for 23, Brand Awareness /contact for local issues.
Published name "Cuala Senior Care Limited" equals CRO name "CUALA SENIOR CARE LIMITED" (CRO 413662) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Continued support of Oireachtas members in 2023
Additional State funding to support increased demand for FirstLight's professional bereavement support services.
Published name "Irish Sudden Infant Death Association" equals CRO name "IRISH SUDDEN INFANT DEATH ASSOCIATION" (CRO 113349) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Support for investment to implement existing policy in relation to neurological care services in Ireland
Published name "Neurological Alliance of Ireland" has no legal form. "NEUROLOGICAL ALLIANCE OF IRELAND COMPANY LIMITED BY GUARANTEE" (CRO 366603) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
The intended outcome of the event was to raise awareness and engage relevant stakeholders on the need to add more rare diseases to Ireland’s newborn screening programme.