Malcolm Noonan

Briefing of public representatives on parallel importation of medicines.

Understanding of the rare disease landscape and the priorities of people living with rare diseases.

Oireachtas Members who dropped by will consider the challenges faced by Meals on Wheels providers and support our request for an increase in funding to providers

For them to support our campaign to enhance Epilepsy Services & Infrastructure nationally to improve access to specialist services and treatments for the 45,000 people living with epilepsy in Ireland.::For them to support our campaign to expand the HSE’s Chronic Disease…

To ask election candidates to sign the Irish Cancer Society General Election pledge.::To congratulate TD's on their election to the 34th Dáil and provide introduction.::To inform general election candidates of ICS election priorities.

Establishment of an Alcohol Office to develop coherent cross-government policy to address issues around alcohol harm.

To update political stakeholders on the importance of addressing health challenges in Ireland as they relate to access to medicines, oncology services and screening, vaccines, rare diseases and the EU pharmaceutical revision proposals through the provision of the MSD Ireland…

access to timely diagnosis, implementation of Action Plan for Disability Services, access to community health services, address crisis in sustainability of disability services, fund cost of meeting pay awards for all staff in disability services

Endorsement of our election manifesto which outlines UNICEF Ireland’s Child Rights Election Manifesto outlines 10 urgent priorities grounded in the UN Convention on the Rights of the Child (CRC)

the Minister's intervention with the HSE on behalf of SOS Kilkenny to ensure the necessary cash flow be provided to SOS Kilkenny in order to meet payroll obligations in October

Highlighting MSD's footprint in Ireland and raising awareness of key health policy priorities and local announcements with political stakeholders

To inform deputies and senators about the benefits of adult vaccination including details of a piece of research commissioned by GSK which demonstrates that implementing adult vaccination programmes in Ireland delivers a return

Expansion of the programme to increase the number of conditions screened for, to be in line with the European average of 18 conditions. In 2022, the condition, ADIA-SCID was added to the NBS programme, however this hasn’t been fully implemented yet. In November 2023, Spinal…

Increased knowledge and understanding of unmet needs of people living with rare diseases.::PQs to Minister to seek commitment to deliver expanded newborn bloodspot screening program.::Expansion of newborn bloodspot screening panel to bring us inline (at minimum) with average…

Inclusion of rare disease priorities in political party manifestos.::Inclusion of rare disease priorities in programme for government following next general election.