Politician · TD · 34th Dáil
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
We intend to introduce Illumina and our work in the field of genomics, as well as to raise awareness of the importance of implementing the National Genetics and Genomics Strategy to the benefit of patients. We also aim to secure meetings with parliamentarians to highlight how…
60,000 babies who are born per annum in Ireland, will be screened for SMA and also severe combined immunodeficiency (SCID), which will mean that Ireland would be inline with their European counterparts.
Published name "Novartis Ireland Limited" equals CRO name "NOVARTIS IRELAND LIMITED" (CRO 11931) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To request changes in the 2024 Finance Budget.
Published name "Association of Insurance & Financial Brokers trading as Brokers Ireland" equals CRO name "ASSOCIATION OF INSURANCE & FINANCIAL BROKERS" (CRO 184744) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Highlight issues relating to cancer strategy funding
Published name "Marie Keating Foundation" equals CRO name "MARIE KEATING FOUNDATION" (CRO 342695) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Secure more public funds for issues of priority for our patient members, including digital health, public and patient partnership, and new medicines/innovations
Published name "Irish Platform for Patients' Organisations, Science and Industry" has no legal form. "IRISH PLATFORM FOR PATIENTS' ORGANISATIONS, SCIENCE AND INDUSTRY COMPANY LIMITED BY GUARANTEE" (CRO 408258) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
To secure support for the development of a coordinated specialist service for families affected by Huntington's Disease by continuing to highlight the complexity of this disease, the generational impact, the lack of appropriate coordinated services and the barriers preventing…
Published name "Huntington's Disease Association of Ireland" equals CRO name "HUNTINGTON'S DISEASE ASSOCIATION OF IRELAND" (CRO 290191) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
addition of SMA to newborn screening blood spot test
Published name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION CLG" equals CRO name "SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION COMPANY LIMITED BY GUARANTEE" (CRO 656603) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Commitment to investment to fully staff a community neurorehabilitation team in each of the nine HSE CHO areas nationwide as recommended in the 2019-2021 Implementation Framework for the National Neurorehabilitation Strategy
Published name "Neurological Alliance of Ireland" has no legal form. "NEUROLOGICAL ALLIANCE OF IRELAND COMPANY LIMITED BY GUARANTEE" (CRO 366603) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
SMH intended to secure meetings with TDs in order to discuss budget/planning for the Autumn budget
Published name "St Michael's House Group" equals CRO name "ST. MICHAEL'S HOUSE GROUP" (CRO 511121) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Examination and full consideration of issues raised by Brokers Ireland in the submission.::A response indicating that the issues raised would be examined and if possible, a meeting with the Minister or officials to discuss the issues directly.
To raise the profile of rare disease policy among relevant political and departmental stakeholders
Published name "Vulcan Consulting Limited" equals CRO name "VULCAN CONSULTING LIMITED" (CRO 578963) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Continued investment and support for tourism development, promotion and marketing ::Seeking a commitment by Government to retain the 9% rate of tourism VAT rate::Seeking adjustments to TBESS (Temporary Business Energy Support Scheme) to include LPG gas in the qualifying…
Awareness raising and improving access to treatments for people with rare diseases.
Published name "Vulcan Consulting Limited" equals CRO name "VULCAN CONSULTING LIMITED" (CRO 578963) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Establish regular meeting of TDs & Senators with an interest in the rare disease community in Ireland. ::Increase awareness and understanding of needs of people living with rare diseases.::TDs & Senators to lobby government colleagues on issues of relevance and concern to people…
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
PQs to Minister to seek commitment to deliver of prog for government promise to support genetic services for people living with rare diseases.
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.