John Lahart

Improved audiology and eye care services in the community

To thank deputies and senators for attending session in AV room, to remind them that adult vaccination delivers a return on investment and to ask for their help lobbying for adult vaccination

Raising awareness about rare disease policy in Ireland in Ireland and the EU and improving access to treatments for rare disease patients

Secure government funding to support patients living with pulmonary fibrosis in Ireland

That HIV Action plan be taken into consideration in General election manifesto

Sought an opportunity to attend the Joint Oireachtas Committee on health hearing on the 2nd October 2024 alongside SIPTU & INMO

Raise awareness of issues affecting home care and disability sector.

To propose that the 5-year land/business transfer clause is reduced to a maximum of three years to allow more farmers to benefit from the Fair Deal Scheme.::To propose a new, statutory Home Support scheme needs to be introduced urgently and adequately funded to support older…

To emphasise that the continued provision of primary care services in rural areas is paramount, requiring adequate investment and resourcing.::To emphasise that the Home Care Package must be introduced under the Nursing Home Support Scheme/Fair Deal to allow older people to be…

Inclusion of rare diseases in Programme for Government - specifically Implementation of new National RD Strategy; Provide timely equitable access to medical innovations, including orphan medicines, advanced therapies, genomics and devices; and Deliver a comprehensive robust…

To update political stakeholders on the importance of addressing health challenges in Ireland as they relate to access to medicines, oncology services and screening, vaccines, rare diseases and the EU pharmaceutical revision proposals through the provision of the MSD Ireland…

Timely implementation of SMA testing into the heel prick test for newborns

Debra wished to thank the parties for their support in 2024 that led to the government support of the 2025 Pre Budget Submission for people living with EB in Ireland and implementation of a plan to fund the initiatives through the HSE from 2025. DEBRA intended to keep parties…

due to the scale of the psychiatric nursing staffing crisis, mental health services must be exempt from the Pay and Numbers Strategy. We believe that mental health services have been largely abandoned and excluded from staffing increases over the last five years. This view is…

To raise the profile of rare disease policy amongst Irish political stakeholders & seek updates on a range of rare disease policy matters.