Lobbying return by Irish Lung Fibrosis Association
HealthLobbying for patients living with a life limiting disease (in Ireland) 'pulmonary fibrosis' and the unmet needs of those patients including patient priorities, funding and transplants
Politician · TD · 34th Dáil
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Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
Lobbying for patients living with a life limiting disease (in Ireland) 'pulmonary fibrosis' and the unmet needs of those patients including patient priorities, funding and transplants
We met with DPOs to discuss a range of issues affecting the LGBTQI+ community under the National LGBTQI+ Inclusion Strategy, including access to equal education and healthcare, and rising attacks and hate towards LGBTQI+ individuals.
Published name "ShoutOut" has no legal form. "SHOUTOUT COMPANY LIMITED BY GUARANTEE" (CRO 749131) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
The ISCP fully supports the objectives of facilitating professional mobility across the European Union and strengthening workforce capacity within health services. We recognise the potential value of a CTF in supporting these aims where it delivers a consistently high standard…
Published name "Irish Society of Chartered Physiotherapists" has no legal form. "IRISH SOCIETY OF CHARTERED PHYSIOTHERAPISTS COMPANY LIMITED BY GUARANTEE" (CRO 146198) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Media coverage to encourage attendance at Solace Cafes in Dublin & Waterford
Published name "Aware" equals CRO name "AWARE" (CRO 235838) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Immediate committment from the HSE to invest in increased levels of staffing at the Adult Congenital Heart Disease Unit in the Mater Hospital and to continue investing in this unit which received=s approx. 450 new patients needing life-long care year on year from CHI Crumlin.
Published name "Heart Children Ireland" equals CRO name "HEART CHILDREN IRELAND" (CRO 371707) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
We requested support in securing a meeting to with the HSE administration to discuss the role of the arts in promoting positive mental health
Immediate action on next cancer strategy including a formal evaluation of outgoing strategy 2017-2026, establishment of appropriate and broad ranging Cancer Strategy Steering Group/Taskforce, clear timelines for the development the next strategy and a target publication date of…
Published name "Breakthrough Cancer Research" equals CRO name "BREAKTHROUGH CANCER RESEARCH" (CRO 496464) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
We were looking for support for Budget submission recommendations put forward by our representing body, LDCN.
Published name "Southside Partnership DLR" has no legal form. "SOUTHSIDE PARTNERSHIP DLR COMPANY LIMITED BY GUARANTEE" (CRO 249267) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
To ensure that the new National Cancer Strategy is developed with input from patient organisations representing the experiences of those with lived experience of CAYA conference.
Published name "Childhood Cancer Foundation" equals CRO name "CHILDHOOD CANCER FOUNDATION" (CRO 535330) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Timely and equitable access to medicines for patients, including the establishment and design of an early access scheme.
Published name "Irish Platform for Patients' Organisations, Science and Industry" has no legal form. "IRISH PLATFORM FOR PATIENTS' ORGANISATIONS, SCIENCE AND INDUSTRY COMPANY LIMITED BY GUARANTEE" (CRO 408258) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
To secure Government and political support for Budget 2027 investment in specialist FND services, including adult and paediatric multidisciplinary teams, regional service development, improved access to neuro-rehabilitation, and the establishment of a National Clinical Programme…
Published name "FND Ireland" equals CRO name "FND IRELAND" (CRO 753172) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To secure Government commitment to the effective implementation of the Mental Health Act 2026, including sustained investment in resources, strategic workforce planning and continued service development to ensure the rights-based and person-centred provisions of the legislation…
Published name "The Psychological Society of Ireland" equals CRO name "THE PSYCHOLOGICAL SOCIETY OF IRELAND" (CRO 110772) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To secure further development and effective implementation of the HSE Autism Assessment and Intervention Pathway Protocol, including robust training and supervision structures, a detailed competency framework, stronger clinical governance, appropriate workforce planning and…
Published name "The Psychological Society of Ireland" equals CRO name "THE PSYCHOLOGICAL SOCIETY OF IRELAND" (CRO 110772) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To contribute stakeholder perspectives to ministerial discussions on the development of Ireland's life sciences sector and the policy measures required to support research, innovation, clinical trial activity, skills development and long-term competitiveness.
Published name "MSD" has no legal form. "M.S.D. LIMITED" (CRO 18759) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
To implement the asks contained in the submission covering areas from housing, to business supports