Lobbying return by Novartis Gene Therapies Gmbh
HealthThe intended outcome of the event was to raise awareness and engage relevant stakeholders on the need to add more rare diseases to Ireland’s newborn screening programme.
Politician · TD · 34th Dáil
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Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
The intended outcome of the event was to raise awareness and engage relevant stakeholders on the need to add more rare diseases to Ireland’s newborn screening programme.
To inform policy makers of reasons for same and actions which could alleviate the issue
For the Deputies to raise these matters with Minister for Health and/or in Oireachtas sessions
Highlighting WHO Plan and seeking to contribute to development of Irish response
An inclusive audit process
Commitment to advance sexual and reproductive health and rights at national and international levels
Published name "Irish Family Planning Association" has no legal form. "IRISH FAMILY PLANNING ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 28395) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Policy change to allow physiotherapists opportunities to work in a range of advanced practice areas
Published name "Irish Society of Chartered Physiotherapists" has no legal form. "IRISH SOCIETY OF CHARTERED PHYSIOTHERAPISTS COMPANY LIMITED BY GUARANTEE" (CRO 146198) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Increased awareness and support for Children in Hospital Ireland's proposals
Published name "Children in Hospital Ireland" equals CRO name "CHILDREN IN HOSPITAL IRELAND" (CRO 297192) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Publication and implementation of National Traveller Health Action Plan
Published name "Pavee Point Traveller & Roma Centre" has no legal form. "PAVEE POINT TRAVELLER & ROMA CENTRE COMPANY LIMITED BY GUARANTEE" (CRO 533605) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Ensuring members of the Committee had a good understanding of the key issues facing the autism community and promoting our vision of a neuro-affirmative, National Autism Strategy
Support for our work and greater public understanding and acceptance of autism
To invite all Oireachtas members to a coffee morning fundraiser for Daffodil Day taking place in Leinster House
Published name "Irish Cancer Society" equals CRO name "IRISH CANCER SOCIETY" (CRO 20868) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
TD is informed on the work of Dublin Simon and financial deficits related to homelessness and health treatment
Published name "Dublin Simon Community" equals CRO name "DUBLIN SIMON COMMUNITY" (CRO 32955) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Commitment to supporting additional investment in neurology nurse specialists within the health system
Published name "Neurological Alliance of Ireland" has no legal form. "NEUROLOGICAL ALLIANCE OF IRELAND COMPANY LIMITED BY GUARANTEE" (CRO 366603) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Commitment to advance sexual and reproductive health and rights at national and international levels
Published name "Irish Family Planning Association" has no legal form. "IRISH FAMILY PLANNING ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 28395) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.