Lobbying return by Dexcom
HealthTo make real time continuous glucose monitoring part of the standard model of care for diabetes patients in Ireland
Politician · TD · 34th Dáil
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Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
To make real time continuous glucose monitoring part of the standard model of care for diabetes patients in Ireland
Expansion of the programme to increase the number of conditions screened for, to be in line with the European average of 18 conditions. In 2022, the condition, ADIA-SCID was added to the NBS programme, however this hasn’t been fully implemented yet. In November 2023, Spinal…
Increased knowledge and understanding of unmet needs of people living with rare diseases.::PQs to Minister to seek commitment to deliver expanded newborn bloodspot screening program.::Expansion of newborn bloodspot screening panel to bring us inline (at minimum) with average…
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Inclusion of rare disease priorities in political party manifestos.::Inclusion of rare disease priorities in programme for government following next general election.
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Seek confirmation from relevant stakeholders to attend the annual Medicines for Europe 2024 Conference - 12 - 13 June in Dublin
Awareness raising and improving access to treatments for people with rare diseases
Published name "BioMarin International Limited" equals CRO name "BIOMARIN INTERNATIONAL LIMITED" (CRO 500060) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Commitment to fulfil Ireland's obligations under international human rights law as it applies to sexual and reproductive health and rights within national and international policy
Published name "Irish Family Planning Association" has no legal form. "IRISH FAMILY PLANNING ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 28395) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Investment in neurorehabilitation services in the community
Support for the CIH pre budget submission which called for additional resources to be allocated to support parents when they have a child in hospital.
Published name "Children in Hospital Ireland" equals CRO name "CHILDREN IN HOSPITAL IRELAND" (CRO 297192) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Raising awareness and support for the delivery of commitments to neurological care outlined in Budget 2022 and Budget 2023 Raising awareness and support for future further investment in neurological care services, including in Budget 2025::Increased awareness of the needs of…
Published name "Neurological Alliance of Ireland" has no legal form. "NEUROLOGICAL ALLIANCE OF IRELAND COMPANY LIMITED BY GUARANTEE" (CRO 366603) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Increased funding for dementia supports and services
Published name "The Alzheimer Society of Ireland" equals CRO name "THE ALZHEIMER SOCIETY OF IRELAND" (CRO 102700) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
increased political awareness and support for dementia issues
Published name "The Alzheimer Society of Ireland" equals CRO name "THE ALZHEIMER SOCIETY OF IRELAND" (CRO 102700) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Was to inform Ministers and TD's that our new Strategic Plan had been launched and the focus of NHI’s new strategy is HOMES, which focuses on the resident and supporting the overall healthcare structure as an integrated and sustainable system. NHI aims to effectively represent…
Support to revisit policy, legislation and process to approve reimbursement of orphan medicines
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Increased knowledge and understanding of unmet needs of people living with rare diseases.::PQs to Minister to seek commitment to deliver expanded newborn bloodspot screening program.::Expansion of newborn bloodspot screening panel to bring us inline (at minimum) with average…
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.