Lobbying return by Prader-Willi Syndrome Association of Ireland
HealthThe establishment of a respite service suited to the needs of adults and children with PWS in Ireland
Politician · TD · 34th Dáil
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
The establishment of a respite service suited to the needs of adults and children with PWS in Ireland
To invite local TDs to an introductory meeting with the grassroots Advocacy Champion from their local constituency;::To schedule and set an agenda for these meetings;::To generally raise political awareness of the difficulties cancer patients, their carers and their families…
Published name "Irish Cancer Society" equals CRO name "IRISH CANCER SOCIETY" (CRO 20868) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To raise awareness among TDs of impact upon cancer patients of car parking charges in hospitals and the use of debt collectors to collect debts owed by patients;::To end the HSE policy of using debt collection agencies to pursue cancer patients with unpaid inpatient charges;::To…
Published name "Irish Cancer Society" equals CRO name "IRISH CANCER SOCIETY" (CRO 20868) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To raise awareness among TDs of Covid-19's impact upon cancer services and on cancer patients and survivors;::To advocate for the prioritisation of cancer patients and their carers in Ireland's Covid-19 vaccination strategy, for the prioritisation of parents and carers of…
Published name "Irish Cancer Society" equals CRO name "IRISH CANCER SOCIETY" (CRO 20868) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Commitment to advance sexual and reproductive health and rights at national and international levels
Published name "Irish Family Planning Association" has no legal form. "IRISH FAMILY PLANNING ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 28395) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
To highlight areas of concern in the draft legislation and advocate for the provision of appropriate support and funding for services including palliative care, pain management, mental health services and disability services.
Publication of the report
To implement at the same time as Northern Ireland
Seeking reform of reimbursement process for innovative medicines and therapies treating Irish patients with rare diseases::Raising awareness of difficulties faced by Irish patients with hATTR Amyloidosis and seeking policy reform to address address barriers to reimbursement and…
Published name "Hanover Media Strategy Limited" equals CRO name "HANOVER MEDIA STRATEGY LIMITED" (CRO 596029) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Jack & Jill Foundation CLG would like to ascertain status of their application for a grant from the Stability Fund
To ask Government Ministers and TDs to ensure that Ireland's public health response to Covid-19 goes beyond a continuous cycle of lockdowns, which the WHO recommends against. We sought the introduction of a robust test, trace, isolation and control system of pandemic management.