Erin McGreehan

To raise the profile of rare disease policy amongst Irish political stakeholders & seek updates on a range of rare disease policy matters.

Highlighting MSD's footprint in Ireland and raising awareness of key health policy priorities and local announcements with political stakeholders

To inform deputies and senators about the benefits of adult vaccination including details of a piece of research commissioned by GSK which demonstrates that implementing adult vaccination programmes in Ireland delivers a return

To get a parliamentary question raised to update on the reimbursement of Jemperli

To discuss inequity of access to oncology treatments in Ireland, and potential measures that could improve access to healthcare for patients.

To share AstraZeneca Ireland's health policy priorities for consideration by political parties ahead of the next General Election

To alert those in government to the priorities of the organisation in advance of the budget

Expansion of the programme to increase the number of conditions screened for, to be in line with the European average of 18 conditions. In 2022, the condition, ADIA-SCID was added to the NBS programme, however this hasn’t been fully implemented yet. In November 2023, Spinal…

to institute a ban on Smartphone use by pupils within all primary schools in Ireland. to urgently develop a well-funded public health strategy modelled on successful “tobacco free” policies to combat social media addiction, use and harm. in light of the case taken by 42 US…

Increased knowledge and understanding of unmet needs of people living with rare diseases.::PQs to Minister to seek commitment to deliver expanded newborn bloodspot screening program.::Expansion of newborn bloodspot screening panel to bring us inline (at minimum) with average…

Inclusion of rare disease priorities in political party manifestos.::Inclusion of rare disease priorities in programme for government following next general election.

Greater investment in MS services as a result of highlighting issues

Issues affecting the MS community to be taken into account by Oireachtas members

Funding secured for 2 pre-budget asks

To invite TDs and Senators to attend an event hosted by the Irish Cancer Society to discuss the Society’s recommendations in the Pre-Budget 2025 Submission. ::To raise awareness of the Irish Cancer Society’s Pre-Budget 2025 Submission.