Duncan Smith

To raise the profile of rare disease policy amongst Irish political stakeholders & seek updates on a range of rare disease policy matters.

Highlighting MSD's footprint in Ireland and raising awareness of key health policy priorities and local announcements with political stakeholders

Awareness raising and improving access to treatments for people with rare diseases.

ICP launched a Pre-Budget 2025 Submission to Government, & General Election Manifesto addressed to all political parties. Both documents include a call for the inclusion of specific commitments by all parties in health/mental health, education & finance. ICP calls on all…

Support for funding 221+ in future, the implementation of the Patient Voice Partner Policy, greater accessibility of lymphoedema treatments/gynaecological physiotherapy/complex menopause hubs, reducing colposcopy waiting times, asked Oireachtas members to bridge gap in support…

Provide an introduction to Takeda Ireland and discuss how to ensure rare disease patients have fair, equal access to treatments.

To secure support from the Labour Party for the Irish Heart Foundation's agenda on tobacco control and e-cigarettes

Seeking inclusion of IHF priorities on cardiovascular health

To inform deputies and senators about the benefits of adult vaccination including details of a piece of research commissioned by GSK which demonstrates that implementing adult vaccination programmes in Ireland delivers a return

Ensure a better understanding of eye care matters, for DPOs to support our calls for increased funding and support, to ensure the sustainability of the services.

We intended to inform politicians that a different way was possible for gender affirming care, and to show that in other countries there are shorter waiting lists and better outcomes for patients. We hoped that this presentation would inform politicians that Ireland has the…

To make real time continuous glucose monitoring part of the standard model of care for diabetes patients in Ireland

Raising awareness of services provided by Prosper via an invitation to attend our first ever Summer Fair. This was a day where the people we support had the opportunity to meet up with old friends who they had not seen in years, enjoy music, dancing, chatting and food.

To improve patient access to new medicines by modernising and speeding up the reimbursement process in line with IPHA proposals.::To ensure a stable budget for new medicines reimbursements in the coming years.::To protect existing levels of Regulatory Data Protection for…

To discuss inequity of access to oncology treatments in Ireland, and potential measures that could improve access to healthcare for patients.