Duncan Smith

Improve public representative knowledge and understanding of challenges faced by polio survivors, ensure that these issues are front and centre when policy is being established by relevent representatives.

1. The rollout of a national screening programme for 1–17-year-olds::2. The implementation of a dietitian-led national treatment programme for managing coeliac disease::3. The allocation of resources to mitigate the financial burden of gluten-free foods for families managing…

To raise the profile of rare disease policy & seek updates on a range of rare disease policy matters.

Exemption secured around certain provisions for charities

Awareness raising and improving access to treatments for people with rare diseases.

To seek information via Parliamentary Question on staff resourcing within cancer genetic departments.::To seek information via Parliamentary Question on attendance data across relevant cancer genetic services.

Was to inform Ministers and TD's that our new Strategic Plan had been launched and the focus of NHI’s new strategy is HOMES, which focuses on the resident and supporting the overall healthcare structure as an integrated and sustainable system. NHI aims to effectively represent…

To inform representatives of issues impacting the home care sector including recruitment challenges, the Statutory Home Support Scheme, social welfare reform and disability home support.::To arrange meetings with representatives to discuss issues impacting the home care sector

To provide secretarial support to the activities of the Oireachtas Cross-Party Group on Cancer.::To meet with the Chair of the Group to discuss priorities for 2024.

Support to revisit policy, legislation and process to approve reimbursement of orphan medicines

To host a coffee morning in Leinster House for all Oireachtas members and staff to mark Daffodil Day.::To invite Oireachtas members and staff to a coffee morning in Leinster House to mark Daffodil Day.::To attend a photocall with An Taoiseach to mark Daffodil Day.

To inform public representatives of the challenges faced by people with a life-limiting cancer diagnosis receiving palliative care in the home.::To make recommendations as to how to support people with a life-limiting cancer diagnosis through government initiatives. ::To invite…

To inform politicians and parties of the ICS's position on the funding allocated to the NCS.::To appear before the Oireachtas Health Committee on the funding needs for the National Cancer Strategy.::To request a meeting to discuss the National Cancer Strategy.

“We hosted, as an Ipha affiliate member (Irish Pharmaceutical Healthcare Association), an Ipha member event on the theme of the future funding of medicines attended by Ipha members. While FINN Partners was not engaged in any lobbying at this event, we decided that as one of the…

To assist in informing Oireachtas members and staff of the signs and symptoms of bowel cancer, to mark Bowel Cancer Awareness Month. ::To assist in informing Oireachtas members and staff of system challenges with the bowel cancer diagnoses and treatment pathway.