Colm Burke

Raise awareness of Rare Lymphomas such as Cutaneous T-Cell Lymphoma.::Raise awareness of the importance of patient involvement in the reimbursement process to ensure the patient voice is represented::Raise awareness of the need for progress in the use of rare disease data…

Amendment to existing legislation to accommodate reimbursement of orphan medicines.

Policy implemented/investment in neuro-rehabilitation services

To seek some clarity and guidance as how best to proceed with our treatment for Covid-19. ie: where with whom in DOH/HSE to engage. as conventional approach could not identify reach the correct POC.

Support for the HRCI calls to ensure national leadership in genomics, through a cross-government approach::Establish a national research ethics committee for patient registries.::Urgently progress the implementation of electronic health records

NHI requested immediate reinstatement of the Temporary Assistant Payment Scheme (TAPS) as it is a vital support to nursing homes who are facing huge cost increases due to the Covid 19 pandemic and who have had to had to implement intensified infection prevention control…

Raised with TD's the impact workforce challenges are having on nursing homes. There is requirement for introduction of pay parity to value the role fulfilled by staff in private and voluntary nursing homes. The Fair Deal scheme facilitates inequality within wage levels. NHI are…

Implementation of National Rare Disease Plan recommendations regarding treatments for rare diseases::Ensure rare disease patients have fair equal access to treatments

Awareness raising

To invite Public Representatives to the IFA's Let's Talk and Walk events. The Green Ribbon campaign is a month-long campaign during September organised by See Change to get people talking openly about mental health problems and to break the stigma of silence associated with…

Increased capacity, staffing and funding to improve the delivery of health care in acute hospital and mental health services.

To encourage Oireachtas Committee on Health members to give due consideration to all smoking harm reduction options as part of the PLS of the Public Health (Tobacco and Nicotine Inhaling Products) Bill

To have a hearing with Vape Business Ireland rescheduled before the PLS of the Public Health (Tobacco and Nicotine Inhaling Products) Bill is concluded by the Committee

To appraise Oireachtas members and members of the Health Committee of the Irish Cancer Society's position with regard to e-cigarettes and tobacco, specifically relating to marketing and flavouring

To inform Members/Ministers on recruitment and retention issues in home care::To share details of and request meeting to discuss HCCI Home Care Winter Recruitment Plan::To seek support for implementation of Statutory Home Support Scheme::To seek support for HCCI attendance at…