Politician · TD · 34th Dáil
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
ICP launched a Pre-Budget 2025 Submission to Government, & General Election Manifesto addressed to all political parties. Both documents include a call for the inclusion of specific commitments by all parties in health/mental health, education & finance. ICP calls on all…
To inform deputies and senators about the benefits of adult vaccination including details of a piece of research commissioned by GSK which demonstrates that implementing adult vaccination programmes in Ireland delivers a return
We intended to inform politicians that a different way was possible for gender affirming care, and to show that in other countries there are shorter waiting lists and better outcomes for patients. We hoped that this presentation would inform politicians that Ireland has the…
Published name "Transgender Equality Network Ireland" has no legal form. "TRANSGENDER EQUALITY NETWORK IRELAND COMPANY LIMITED BY GUARANTEE" (CRO 481106) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Expansion of the programme to increase the number of conditions screened for, to be in line with the European average of 18 conditions. In 2022, the condition, ADIA-SCID was added to the NBS programme, however this hasn’t been fully implemented yet. In November 2023, Spinal…
Increased knowledge and understanding of unmet needs of people living with rare diseases.::PQs to Minister to seek commitment to deliver expanded newborn bloodspot screening program.::Expansion of newborn bloodspot screening panel to bring us inline (at minimum) with average…
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Inclusion of rare disease priorities in political party manifestos.::Inclusion of rare disease priorities in programme for government following next general election.
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To invite TDs and Senators to attend an event hosted by the Irish Cancer Society to discuss the Society’s recommendations in the Pre-Budget 2025 Submission. ::To raise awareness of the Irish Cancer Society’s Pre-Budget 2025 Submission.
Published name "Irish Cancer Society" equals CRO name "IRISH CANCER SOCIETY" (CRO 20868) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
1. Over the lifetime of the next Government, increase research and development investment, year-on-year, to the EU average of 0.71% of GDP. ::2. Enact legislation on research ethics committees and biobanking to ensure that critical gaps in the research landscape are addressed…
Published name "Health Research Charities Ireland" has no legal form. "HEALTH RESEARCH CHARITIES IRELAND COMPANY LIMITED BY GUARANTEE" (CRO 377794) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Raising awareness and support for the delivery of commitments to neurological care outlined in Budget 2022 and Budget 2023 Raising awareness and support for future further investment in neurological care services, including in Budget 2025::Increased awareness of the needs of…
Published name "Neurological Alliance of Ireland" has no legal form. "NEUROLOGICAL ALLIANCE OF IRELAND COMPANY LIMITED BY GUARANTEE" (CRO 366603) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Increased funding for dementia supports and services
Published name "The Alzheimer Society of Ireland" equals CRO name "THE ALZHEIMER SOCIETY OF IRELAND" (CRO 102700) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
increased political awareness and support for dementia issues
Published name "The Alzheimer Society of Ireland" equals CRO name "THE ALZHEIMER SOCIETY OF IRELAND" (CRO 102700) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Support to revisit policy, legislation and process to approve reimbursement of orphan medicines
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
To host a coffee morning in Leinster House for all Oireachtas members and staff to mark Daffodil Day.::To invite Oireachtas members and staff to a coffee morning in Leinster House to mark Daffodil Day.::To attend a photocall with An Taoiseach to mark Daffodil Day.
Published name "Irish Cancer Society" equals CRO name "IRISH CANCER SOCIETY" (CRO 20868) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Increased knowledge and understanding of unmet needs of people living with rare diseases.::PQs to Minister to seek commitment to deliver expanded newborn bloodspot screening program.::Expansion of newborn bloodspot screening panel to bring us inline (at minimum) with average…
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
The aim of the correspondence was to encourage members of the Oireachtas to attend the event which would be an opportunity to have informal discussions with ASI staff, raise awareness of dementia in general, and meet people with the lived experience of dementia and family carers.
Published name "The Alzheimer Society of Ireland" equals CRO name "THE ALZHEIMER SOCIETY OF IRELAND" (CRO 102700) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.