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Declared

CRO company · CRO company 408258

IRISH PLATFORM FOR PATIENTS' ORGANISATIONS, SCIENCE AND INDUSTRY COMPANY LIMITED BY GUARANTEE

Company number
408258
Status
Normal
Type
CLG - Company Limited by Guarantee
Registered
2005-09-20
Registered office
77 CAMDEN STREET LOWER, DUBLIN 2, D02XE80
Latest accounts made up to
2024-12-31
Last annual return
2025-09-20
Next annual return date
2026-09-20
Current name since
2016-12-01
Current type since
2015-06-01
0
Awards
Every award names several suppliers
None
Sole-supplier value
0
Shared awards
0
Declared by politicians

Directors, secretaries and shareholders are not in CRO's open data. CRO sells officer information through CORE; it is not shown here rather than guessed.

Lobbying returns

Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.

Download CSV 42 rows, with the filters applied
Register of Lobbying2022-05-10

Lobbying return by Irish Platform for Patients' Organisations, Science and Industry

Health
Intended results

Prioritisation of chronic and rare disease patients for new COVID treatments (medicines)

Derived link · Matched by name with added legal form

Published name "Irish Platform for Patients' Organisations, Science and Industry" has no legal form. "IRISH PLATFORM FOR PATIENTS' ORGANISATIONS, SCIENCE AND INDUSTRY COMPANY LIMITED BY GUARANTEE" (CRO 408258) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.

Register of Lobbying2022-01-17

Lobbying return by Irish Platform for Patients' Organisations, Science and Industry

Health
Intended results

All chronic and rare patients to be prioritised for COVID-19 booster vaccines

Derived link · Matched by name with added legal form

Published name "Irish Platform for Patients' Organisations, Science and Industry" has no legal form. "IRISH PLATFORM FOR PATIENTS' ORGANISATIONS, SCIENCE AND INDUSTRY COMPANY LIMITED BY GUARANTEE" (CRO 408258) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.

Register of Lobbying2022-01-17

Lobbying return by Irish Platform for Patients' Organisations, Science and Industry

Health
Intended results

We hoped to highlight patient concerns around the governance and implementation of the ehealth element of the Slaintecare reform programme, and to encourage members of the joint committee to keep monitoring these issues on behalf of patients.

Derived link · Matched by name with added legal form

Published name "Irish Platform for Patients' Organisations, Science and Industry" has no legal form. "IRISH PLATFORM FOR PATIENTS' ORGANISATIONS, SCIENCE AND INDUSTRY COMPANY LIMITED BY GUARANTEE" (CRO 408258) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.

Register of Lobbying2022-01-17

Lobbying return by Irish Platform for Patients' Organisations, Science and Industry

Health
Intended results

we thanked him for his reply to our pre-budget submission and we shared with him our letter to the joint committee around concerns with the governance and implementation of ehealth elements of Slaintecare.

Derived link · Matched by name with added legal form

Published name "Irish Platform for Patients' Organisations, Science and Industry" has no legal form. "IRISH PLATFORM FOR PATIENTS' ORGANISATIONS, SCIENCE AND INDUSTRY COMPANY LIMITED BY GUARANTEE" (CRO 408258) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.

Register of Lobbying2022-01-17

Lobbying return by Irish Platform for Patients' Organisations, Science and Industry

Health
Intended results

We thanked her for raising a question around the concerns highlighted in our letter to joint committee members around the governance and implementation of ehealth elements of Slaintecare, and we asked to continue to keep ehealth as a priority issue..

Derived link · Matched by name with added legal form

Published name "Irish Platform for Patients' Organisations, Science and Industry" has no legal form. "IRISH PLATFORM FOR PATIENTS' ORGANISATIONS, SCIENCE AND INDUSTRY COMPANY LIMITED BY GUARANTEE" (CRO 408258) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.

Register of Lobbying2021-09-01

Lobbying return by Irish Platform for Patients' Organisations, Science and Industry

Health
Intended results

Greater and more systematic patient involvement and public transparency on the negotiation process

Derived link · Matched by name with added legal form

Published name "Irish Platform for Patients' Organisations, Science and Industry" has no legal form. "IRISH PLATFORM FOR PATIENTS' ORGANISATIONS, SCIENCE AND INDUSTRY COMPANY LIMITED BY GUARANTEE" (CRO 408258) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.

Register of Lobbying2021-09-01

Lobbying return by Irish Platform for Patients' Organisations, Science and Industry

Health
Intended results

Commitment to organise a meeting with the wider community involved in health information policy

Derived link · Matched by name with added legal form

Published name "Irish Platform for Patients' Organisations, Science and Industry" has no legal form. "IRISH PLATFORM FOR PATIENTS' ORGANISATIONS, SCIENCE AND INDUSTRY COMPANY LIMITED BY GUARANTEE" (CRO 408258) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.

Register of Lobbying2021-05-21

Lobbying return by Irish Platform for Patients' Organisations, Science and Industry

Health
Intended results

A re-establishing of a specific contact point in the Dept of health for Rare Diseases, as well as the regular engagement between the Dept. of health and the rare disease Taskforce

Derived link · Matched by name with added legal form

Published name "Irish Platform for Patients' Organisations, Science and Industry" has no legal form. "IRISH PLATFORM FOR PATIENTS' ORGANISATIONS, SCIENCE AND INDUSTRY COMPANY LIMITED BY GUARANTEE" (CRO 408258) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.

Register of Lobbying2021-01-18

Lobbying return by Irish Platform for Patients' Organisations, Science and Industry

Health
Intended results

Greater prioritisation for vaccinating persons with chronic and rare diseases

Derived link · Matched by name with added legal form

Published name "Irish Platform for Patients' Organisations, Science and Industry" has no legal form. "IRISH PLATFORM FOR PATIENTS' ORGANISATIONS, SCIENCE AND INDUSTRY COMPANY LIMITED BY GUARANTEE" (CRO 408258) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.

Register of Lobbying2020-09-02

Lobbying return by Irish Platform for Patients' Organisations, Science and Industry

Health
Intended results

To fill the vacant Patient Representative position on HSE Board

Derived link · Matched by name with added legal form

Published name "Irish Platform for Patients' Organisations, Science and Industry" has no legal form. "IRISH PLATFORM FOR PATIENTS' ORGANISATIONS, SCIENCE AND INDUSTRY COMPANY LIMITED BY GUARANTEE" (CRO 408258) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.

Register of Lobbying2020-09-02

Lobbying return by Irish Platform for Patients' Organisations, Science and Industry

Health
Intended results

To have the members of the Special Committee on COVID-19 be cognisant of the Patient Perspective and their needs

Derived link · Matched by name with added legal form

Published name "Irish Platform for Patients' Organisations, Science and Industry" has no legal form. "IRISH PLATFORM FOR PATIENTS' ORGANISATIONS, SCIENCE AND INDUSTRY COMPANY LIMITED BY GUARANTEE" (CRO 408258) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.

Register of Lobbying2019-04-29

Lobbying return by Irish Platform for Patients' Organisations, Science and Industry

Health
Intended results

Input into the Terms of Reference for Mini Review of the Drug Assessment and Review Process

Derived link · Matched by name with added legal form

Published name "Irish Platform for Patients' Organisations, Science and Industry" has no legal form. "IRISH PLATFORM FOR PATIENTS' ORGANISATIONS, SCIENCE AND INDUSTRY COMPANY LIMITED BY GUARANTEE" (CRO 408258) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.

Register of Lobbying2019-04-29

Lobbying return by Irish Platform for Patients' Organisations, Science and Industry

Health
Intended results

Non reduction of Patient Advocates on Health Service Executive Board

Derived link · Matched by name with added legal form

Published name "Irish Platform for Patients' Organisations, Science and Industry" has no legal form. "IRISH PLATFORM FOR PATIENTS' ORGANISATIONS, SCIENCE AND INDUSTRY COMPANY LIMITED BY GUARANTEE" (CRO 408258) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.

Register of Lobbying2019-01-10

Lobbying return by Irish Platform for Patients' Organisations, Science and Industry

Health
Intended results

Potential Partnership as part of IPPOSI's 2019 theme of Patient Data

Derived link · Matched by name with added legal form

Published name "Irish Platform for Patients' Organisations, Science and Industry" has no legal form. "IRISH PLATFORM FOR PATIENTS' ORGANISATIONS, SCIENCE AND INDUSTRY COMPANY LIMITED BY GUARANTEE" (CRO 408258) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.

Register of Lobbying2018-09-04

Lobbying return by Irish Platform for Patients' Organisations, Science and Industry

Health
Intended results

Support for the full implementation of the National Rare Disease Plan 2014-2018::Support for the development of a follow-on Plan for the period 2018-2021

Derived link · Matched by name with added legal form

Published name "Irish Platform for Patients' Organisations, Science and Industry" has no legal form. "IRISH PLATFORM FOR PATIENTS' ORGANISATIONS, SCIENCE AND INDUSTRY COMPANY LIMITED BY GUARANTEE" (CRO 408258) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.