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Lobbying returns
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
Response to €80 venesection charge for HH patients and contact point within the HSE/Department of Health secured
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Register of Lobbying2021-05-21
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
To discuss issues of concern to Haemochromatosis patients in Ireland
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Register of Lobbying2021-01-20
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
Meeting request with Minister Stephen Donnelly to raise our key concerns, ie five main concerns to haemochromatosis patients as listed under specific details
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Register of Lobbying2021-01-20
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
To seek responses and engagement from the Department of Health and Minister Stephen Donnelly on the key concerns for haemochromatosis patients in Ireland, ie five main concerns to haemochromatosis patients as listed under specific details
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Register of Lobbying2021-01-20
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
To seek the passing of the motion relating to key concerns for haemochromatosis patients in Ireland ie as listed under specific details
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Register of Lobbying2020-09-21
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
Meeting request with Minister Stephen Donnelly to raise our concerns, waiving of venesection charge and discussion of national screening programme
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Register of Lobbying2020-05-20
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
We specifically requested that individual politicians and public representatives include a committment to bring this to the Dail for discussion or include the matter in their health manifestos prior to election
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Register of Lobbying2020-01-20
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
Objective - that Simon Harris and other elected representatives would relook at hospital charges within the HSE/Department of Health and agree to remove this unjust charge of €80 per venesection for Haemochromatosis patients which is being unfairly charged to patients who have…
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.