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Lobbying returns
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
To invite Ministers and Senators to our Briefing on the 17th May, to secure the support of Ministers and Senators in our call for a National Strategy for Haemochromatosis and a Contact Lead for Haemochromatosis in the HSE & Department of Health
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Register of Lobbying2023-05-14
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
A National Strategy for Haemochromatosis to be in place and a Briefing to TDs and Senators to take place in Leinster House
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Register of Lobbying2023-01-19
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
Main contact person, HH to be considered a chronic illness, waiving of venesection fees for patients without medical cards and without private insurance
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Register of Lobbying2022-08-31
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
To secure main contact point for haemochromatosis within the HSE or the Department of Health
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Register of Lobbying2022-05-20
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
Contact person for haemochromatosis in place
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Register of Lobbying2022-01-13
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
€80 charge for venesections for haemochromatosis patients waived and contact point for haemochromatosis in the Department of Health or the HSE secured for the IHA
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Register of Lobbying2021-09-22
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
Response to €80 venesection charge for HH patients and contact point within the HSE/Department of Health secured
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Register of Lobbying2021-05-21
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
To discuss issues of concern to Haemochromatosis patients in Ireland
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Register of Lobbying2021-01-20
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
Meeting request with Minister Stephen Donnelly to raise our key concerns, ie five main concerns to haemochromatosis patients as listed under specific details
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Register of Lobbying2021-01-20
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
To seek responses and engagement from the Department of Health and Minister Stephen Donnelly on the key concerns for haemochromatosis patients in Ireland, ie five main concerns to haemochromatosis patients as listed under specific details
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Register of Lobbying2021-01-20
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
To seek the passing of the motion relating to key concerns for haemochromatosis patients in Ireland ie as listed under specific details
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Register of Lobbying2020-09-21
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
Meeting request with Minister Stephen Donnelly to raise our concerns, waiving of venesection charge and discussion of national screening programme
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Register of Lobbying2020-05-20
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
We specifically requested that individual politicians and public representatives include a committment to bring this to the Dail for discussion or include the matter in their health manifestos prior to election
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.
Register of Lobbying2020-01-20
Lobbying return by Irish Haemochromatosis Association
Health
Intended results
Objective - that Simon Harris and other elected representatives would relook at hospital charges within the HSE/Department of Health and agree to remove this unjust charge of €80 per venesection for Haemochromatosis patients which is being unfairly charged to patients who have…
Derived link · Matched by name with added legal form
Published name "Irish Haemochromatosis Association" has no legal form. "IRISH HAEMOCHROMATOSIS ASSOCIATION COMPANY LIMITED BY GUARANTEE" (CRO 309916) is the only CRO company with that name plus any legal form (Limited, DAC, UC, CLG, PLC or Teoranta). Confirm against the CRO record before relying on it.