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Lobbying returns
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
Lobbying return by Huntington's Disease Association of Ireland
Health
Intended results
To gain political support for the resourcing and implementation of a Huntington's Disease Care Pathway to ensure families affected by Huntington's disease have access to coordinated specialist mutli-disciplinary care
Derived link · Matched by exact company name
Published name "Huntington's Disease Association of Ireland" equals CRO name "HUNTINGTON'S DISEASE ASSOCIATION OF IRELAND" (CRO 290191) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2026-05-13
Lobbying return by Huntington's Disease Association of Ireland
Social Protection
Intended results
Increase awareness of the need for an integrated care pathway for Huntington's disease to ensure earlier intervention and access to available social protection for families impacted
Derived link · Matched by exact company name
Published name "Huntington's Disease Association of Ireland" equals CRO name "HUNTINGTON'S DISEASE ASSOCIATION OF IRELAND" (CRO 290191) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2026-01-28
Lobbying return by Huntington's Disease Association of Ireland
Health
Intended results
To highlight the complex nature of Huntington’s disease (HD) and the persistent impact it has on families over generations in order to gain political support for a national HD specialist mutli-disciplinary service with coordinated care, outreach and a dedicated care pathway.
Derived link · Matched by exact company name
Published name "Huntington's Disease Association of Ireland" equals CRO name "HUNTINGTON'S DISEASE ASSOCIATION OF IRELAND" (CRO 290191) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.