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Lobbying returns
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
Lobbying return by Huntington's Disease Association of Ireland
Health
Intended results
To gain political support for the resourcing and implementation of a Huntington's Disease Care Pathway to ensure families affected by Huntington's disease have access to coordinated specialist mutli-disciplinary care
Derived link · Matched by exact company name
Published name "Huntington's Disease Association of Ireland" equals CRO name "HUNTINGTON'S DISEASE ASSOCIATION OF IRELAND" (CRO 290191) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2026-01-28
Lobbying return by Huntington's Disease Association of Ireland
Health
Intended results
To highlight the complex nature of Huntington’s disease (HD) and the persistent impact it has on families over generations in order to gain political support for a national HD specialist mutli-disciplinary service with coordinated care, outreach and a dedicated care pathway.
Derived link · Matched by exact company name
Published name "Huntington's Disease Association of Ireland" equals CRO name "HUNTINGTON'S DISEASE ASSOCIATION OF IRELAND" (CRO 290191) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2025-01-15
Lobbying return by Huntington's Disease Association of Ireland
Health
Intended results
To highlight the complex nature of Huntington’s disease (HD) and the persistent impact it has on families over generations in order to gain political support for a national HD specialist mutli-disciplinary service with coordinated care , outreach and a dedicated care pathway.
Derived link · Matched by exact company name
Published name "Huntington's Disease Association of Ireland" equals CRO name "HUNTINGTON'S DISEASE ASSOCIATION OF IRELAND" (CRO 290191) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2024-09-20
Lobbying return by Huntington's Disease Association of Ireland
Health
Intended results
To secure an Advanced Nurse Practitioner post for Huntington’s Disease at University Hospital Galway
Derived link · Matched by exact company name
Published name "Huntington's Disease Association of Ireland" equals CRO name "HUNTINGTON'S DISEASE ASSOCIATION OF IRELAND" (CRO 290191) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2024-01-12
Lobbying return by Huntington's Disease Association of Ireland
Health
Intended results
To secure support for the development of a coordinated specialist service for families affected by Huntington's Disease by continuing to highlight the complexity of this disease, the generational impact, the lack of appropriate coordinated services and the barriers preventing…
Derived link · Matched by exact company name
Published name "Huntington's Disease Association of Ireland" equals CRO name "HUNTINGTON'S DISEASE ASSOCIATION OF IRELAND" (CRO 290191) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2023-09-04
Lobbying return by Huntington's Disease Association of Ireland
Health
Intended results
To secure support for the development of a coordinated specialist service for families affected by Huntington's Disease by continuing to highlight the complexity of this disease, the generational impact, the lack of appropriate coordinated services and the barriers preventing…
Derived link · Matched by exact company name
Published name "Huntington's Disease Association of Ireland" equals CRO name "HUNTINGTON'S DISEASE ASSOCIATION OF IRELAND" (CRO 290191) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2023-05-15
Lobbying return by Huntington's Disease Association of Ireland
Health
Intended results
To secure support for the development of a coordinated specialist service for families affected by Huntington's Disease by highlighting the complexity of this disease, the generational impact, the lack of appropriate coordinated services and the barriers preventing access to…
Derived link · Matched by exact company name
Published name "Huntington's Disease Association of Ireland" equals CRO name "HUNTINGTON'S DISEASE ASSOCIATION OF IRELAND" (CRO 290191) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2023-01-09
Lobbying return by Huntington's Disease Association of Ireland
Health
Intended results
To secure a meeting with Ministers of State at the Department of Health to discuss issues affecting people with Huntington's Disease and their families including the generational impact, the lack of appropriate coordinated services, barriers preventing access to existing health…
Derived link · Matched by exact company name
Published name "Huntington's Disease Association of Ireland" equals CRO name "HUNTINGTON'S DISEASE ASSOCIATION OF IRELAND" (CRO 290191) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2022-08-31
Lobbying return by Huntington's Disease Association of Ireland
Health
Intended results
To highlight the complex nature of Huntington’s disease (HD) and the persistent impact it has on families over generations in order to gain political support for a national HD specialist mutli-disciplinary service with coordinated care and outreach and dedicated care pathways.
Derived link · Matched by exact company name
Published name "Huntington's Disease Association of Ireland" equals CRO name "HUNTINGTON'S DISEASE ASSOCIATION OF IRELAND" (CRO 290191) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2022-05-21
Lobbying return by Huntington's Disease Association of Ireland
Health
Intended results
To highlight the complex nature of Huntington’s disease (HD) and the persistent impact it has on families over generations in order to gain political support for a national HD specialist mutli-disciplinary service with coordinated care and outreach and dedicated care pathways.
Derived link · Matched by exact company name
Published name "Huntington's Disease Association of Ireland" equals CRO name "HUNTINGTON'S DISEASE ASSOCIATION OF IRELAND" (CRO 290191) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2022-01-17
Lobbying return by Huntington's Disease Association of Ireland
Health
Intended results
To secure a meeting with Ministers to discuss issues affecting people with Huntington's including the lack of specialist coordinated services, barriers to access general health services and to highlight the essential need for a coordinated specialist service for families…
Derived link · Matched by exact company name
Published name "Huntington's Disease Association of Ireland" equals CRO name "HUNTINGTON'S DISEASE ASSOCIATION OF IRELAND" (CRO 290191) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2021-09-13
Lobbying return by Huntington's Disease Association of Ireland
Health
Intended results
To raise awareness of the impact of Huntington’s disease on individuals and families affected.
Derived link · Matched by exact company name
Published name "Huntington's Disease Association of Ireland" equals CRO name "HUNTINGTON'S DISEASE ASSOCIATION OF IRELAND" (CRO 290191) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2020-05-15
Lobbying return by Huntington's Disease Association of Ireland
Health
Intended results
Awareness and improved services for people impacted by Huntington's Disease
Derived link · Matched by exact company name
Published name "Huntington's Disease Association of Ireland" equals CRO name "HUNTINGTON'S DISEASE ASSOCIATION OF IRELAND" (CRO 290191) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2020-01-16
Lobbying return by Huntington's Disease Association of Ireland
Health
Intended results
Awareness of the need to maintain specialist respite and holiday services (at Cuisle) for people with complex disability, including those living with Huntington’s Disease, who cannot avail of hotel respite breaks. Throughout Ireland people living with complex conditions and…
Derived link · Matched by exact company name
Published name "Huntington's Disease Association of Ireland" equals CRO name "HUNTINGTON'S DISEASE ASSOCIATION OF IRELAND" (CRO 290191) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2019-01-15
Lobbying return by Huntington's Disease Association of Ireland
Health
Intended results
To inform the Minister about the critical issues facing people living with HD and their families and of the need for dedicated MDT clinics in Ireland. To seek the Minister's support: for proposals to develop a HD MDT clinic at Beaumont Hospital; for improved access to community…
Derived link · Matched by exact company name
Published name "Huntington's Disease Association of Ireland" equals CRO name "HUNTINGTON'S DISEASE ASSOCIATION OF IRELAND" (CRO 290191) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.