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Lobbying returns
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
Inclusion of rare diseases as a priority for Ireland to showcase during Ireland's EU Presidency in 2026.
Derived link · Matched by exact company name
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2025-09-20
Lobbying return by Rare Diseases Ireland
Health
Intended results
Inclusion of rare disease topics on schedule for Health Committee meetings.
Derived link · Matched by exact company name
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2025-05-15
Lobbying return by Rare Diseases Ireland
Health
Intended results
Understanding of the rare disease landscape and the priorities of people living with rare diseases.
Derived link · Matched by exact company name
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2025-05-15
Lobbying return by Rare Diseases Ireland
Health
Intended results
Ministerial support for people living with rare diseases
Derived link · Matched by exact company name
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2025-01-14
Lobbying return by Rare Diseases Ireland
Health
Intended results
Meet with personnel at Department of Health to discuss revision to EU Pharma legislation
Derived link · Matched by exact company name
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2025-01-14
Lobbying return by Rare Diseases Ireland
Health
Intended results
Inclusion of rare diseases in Programme for Government - specifically Implementation of new National RD Strategy; Provide timely equitable access to medical innovations, including orphan medicines, advanced therapies, genomics and devices; and Deliver a comprehensive robust…
Derived link · Matched by exact company name
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.