Directors, secretaries and shareholders are not in CRO's open data. CRO sells officer information through CORE; it is not shown here rather than guessed.
Lobbying returns
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
Highlight concerns regarding the operation of the RDTRC and the impact on vulnerable members of Irish society.::Request assurance that Minister ensures HSE & NCPE Leadership commit the necessary resources to ensure operation of RDTRC as intended.
Derived link · Matched by exact company name
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2019-09-19
Lobbying return by Rare Diseases Ireland
Health
Intended results
Allocation of budget to implement recommendations RD Plan;::Allocation of budget to support RDI gathering and capacity building of RD patient voice;::Commiment to support HSE to develop and roll-out a publiv RD awareness campaign for HCPs, patients/families & public.
Derived link · Matched by exact company name
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2019-09-19
Lobbying return by Rare Diseases Ireland
Health
Intended results
Secure commitment to provide core funding to Rare Diseases Ireland to enable organisation to build capacity for inclusion of rare disease patient voice across all aspects of healthcare provision to the rare disease community - support implementation of all recommendations of RD…
Derived link · Matched by exact company name
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2019-05-08
Lobbying return by Rare Diseases Ireland
Health
Intended results
Provide support to the Amendment to the 2013 Act.::Influence the development of the Amendment to the 2013 Act.
Derived link · Matched by exact company name
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2019-01-18
Lobbying return by Rare Diseases Ireland
Health
Intended results
Introduction of appropriate systems and processes to evluate orphan drugs for reimbursement
Derived link · Matched by exact company name
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.