Directors, secretaries and shareholders are not in CRO's open data. CRO sells officer information through CORE; it is not shown here rather than guessed.
Lobbying returns
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
Inclusion of rare disease policies in programme for government
Derived link · Matched by exact company name
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2020-05-20
Lobbying return by Rare Diseases Ireland
Health
Intended results
Inclusion of rare disease policies in programme for government
Derived link · Matched by exact company name
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Register of Lobbying2020-01-20
Lobbying return by Rare Diseases Ireland
Health
Intended results
ensure that we have a national representative join the Orphanet focus group, created within the SGPP at DG Sante in the European Commission, where Orphanet sustainability issues will be discussed and decisions will be made.::continue and expand support of Orphanet national…
Derived link · Matched by exact company name
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.