CRO company · CRO company 140743
Directors, secretaries and shareholders are not in CRO's open data. CRO sells officer information through CORE; it is not shown here rather than guessed.
Returns filed on the Register of Lobbying, newest first, with the policy area and intended results as the lobbyist published them.
Adoption of UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families.”
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Support for rare community and appointment of resources at DoH to deliver promises in Prog for Gov't
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Meeting with Health Committee
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Inclusion of rare disease policies in programme for government
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Inclusion of rare disease policies in programme for government
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
ensure that we have a national representative join the Orphanet focus group, created within the SGPP at DG Sante in the European Commission, where Orphanet sustainability issues will be discussed and decisions will be made.::continue and expand support of Orphanet national…
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Highlight concerns regarding the operation of the RDTRC and the impact on vulnerable members of Irish society.::Request assurance that Minister ensures HSE & NCPE Leadership commit the necessary resources to ensure operation of RDTRC as intended.
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Allocation of budget to implement recommendations RD Plan;::Allocation of budget to support RDI gathering and capacity building of RD patient voice;::Commiment to support HSE to develop and roll-out a publiv RD awareness campaign for HCPs, patients/families & public.
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Secure commitment to provide core funding to Rare Diseases Ireland to enable organisation to build capacity for inclusion of rare disease patient voice across all aspects of healthcare provision to the rare disease community - support implementation of all recommendations of RD…
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Provide support to the Amendment to the 2013 Act.::Influence the development of the Amendment to the 2013 Act.
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.
Introduction of appropriate systems and processes to evluate orphan drugs for reimbursement
Published name "Rare Diseases Ireland" equals CRO name "RARE DISEASES IRELAND" (CRO 140743) after normalising legal forms such as Ltd = Limited. No other CRO company has this name. Names can be shared, so compare the address and dates on the CRO record.